Cerebral Palsy Research Network Blog

_NINDS CDE


Field Value
CDE ID C21953
CDE Name Pediatric Quality of Life Inventory(PedsQL) – Physical health summary score
Variable Name PedsQLPhyHeaSumScore
Definition

Summary Score of the Physical Functioning Scale Score as a part of Pediatric Quality of Life Inventory (PedsQL).

Description
Instructions

Scoring instructions for all PedsQL Instruments: http://www.pedsql.org/PedsQL-Scoring.pdf. Step 1: Transform Score: Items are reversed scored and linearly transformed to a 0-100 scale as follows: 0=100, 1=75, 2=50, 3=25,4=0. Step 2: Calculate Scores: Score by Dimensions: If more than 50% of the items in the scale are missing, the Scale Scores should not be computed. Mean Score = Sum of the items over the numbers of items answered.

Input Restrictions Free-Form Entry
Permissible Values
Question Text Physical Health Summary Score= Sum of the physical functioning subscale as a part of Pediatric Quality of Life (PedsQL)
Data Type Numeric Values
Population Pediatric
Measurement Type
Field Size
Minimum Value 0
Maximum Value 100
Domain Outcomes and End Points
SubDomain Quality of Life/Patient Reported Outcomes
CRF Module Pediatric Quality of Life Inventory (PEDSQL)
Alias Aliases for variable name not defined
Classification Supplemental
Copyright/Trademark
Previous Title
References

“Copyright 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. Scoring instructions for all PedsQL Instruments: http://www.pedsql.org/PedsQL-Scoring.pdf

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SNOMED
Version Date 2016-06-06T15:53:45
Version Number 1