The Cerebral Palsy Research Network (CPRN) investigators will be presenting in eight sessions this fall at the combined American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) 73rd Annual and the International Alliance of Academies of Childhood Disabilities (IAACD) 2nd Triannual meeting. All of CPRN’s new abstracts have been accepted including one scientific presentation, five posters and one breakfast seminar. The eighth presentation is a focused symposium in which CPRN will contribute to a panel discussion of CP registries across the world.
Six of our presentations are built on data from our registry including:
- Garey Noritz, MD, “Report from the Cerebral Palsy Research Network- 2019”
- Adam Ostendorf, MD, “Epilepsy Prevalence, Treatment and Intractability in the Cerebral Palsy Research Network Cohort”
- Jeffrey Leonard, MD, “A Descriptive Study of Surgical Interventions for Cerebral Palsy Patients in the Cerebral Palsy Research Network Registry”
- Robert Bollo, MD, “A prospective, multi-center initiative to reduce intrathecal baclofen pump surgical site infection: a Cerebral Palsy Research Network quality improvement project”
- Mary Gannotti, PT, PhD, “Pain experiences among aging adults with cerebral palsy: leveraging the Cerebral Palsy Research Network Community Registry for Patient Reported Outcomes”
- Paul Gross and Mary Gannotti, “How to engage patients in research and garner patient-reported outcomes using the CPRN Community Registry.”
As mentioned in the blog post from February 6, 2019, we believe the CPRN registry is gaining traction to advance research in CP. We are honored to have the recognition of the scientific program committee of AACPDM and IAACD. CPRN congratulates all the investigators who will be presenting their scientific efforts and thanks all the network sites for the many contributions to the registry and CPRN’s scientific collaborations.