CPRN Registry Elements

single choice

the foot contacting the ground (like a stomp) heel-first

Are we talking about respiratory allergies only?

Indicator of whether or not antibiotics were utilized during the birthing process.

Seated spine AP (anterior/posterior): view of the spine from the an anterior/posterior position while the patient is in a seated position. Indication of which side of the body the apex of curvature of the spine is in the cervical portion of the spine (superior most 7 vertebrae of the spine)

Seated spine AP (anterior/posterior): view of the spine from the an anterior/posterior position while the patient is in a seated position. Indication of which side of the body the apex of curvature of the spine is in the lumbar portion of the spine inferior most 5 vertebrae of the spine)

Seated spine AP (anterior/posterior): view of the spine from the an anterior/posterior position while the patient is in a seated position. Indication of which side of the body the apex of curvature of the spine is in the thoracic portion of the spine (middle 12 vertebrae of the spine)

Seated spine AP (anterior/posterior): view of the spine from the an anterior/posterior position while the patient is in a seated position. Indication of which side of the body the apex of curvature of the spine is in the thoracolumbar portion of the spine (portion of the spine between the cervical spine and the lumbar spine)

Seated spine LAT (lateral): view of the spine from the a lateral position while the patient is in a seated position. Indication of which side of the body the apex of curvature of the spine is in the cervical portion of the spine (superior most 7 vertebrae of the spine)

Seated spine LAT (lateral): view of the spine from the a lateral position while the patient is in a seated position. Indication of which side of the body the apex of curvature of the spine is in the lumbar portion of the spine inferior most 5 vertebrae of the spine)

Seated spine LAT (lateral): view of the spine from the a lateral position while the patient is in a seated position
Indication of which side of the body the apex of curvature of the spine is in the thoracic portion of the spine (middle 12 vertebrae of the spine)

Seated spine LAT (lateral): view of the spine from the a lateral position while the patient is in a seated position
Indication of which side of the body the apex of curvature of the spine is in the thoracolumbar portion of the spine (portion of the spine between the cervical spine and the lumbar spine)

Test to assess the health of newborn children against infant mortality. 10 minute: conducted 10 minutes after birth determining how well the baby is doing outside the womb.

Test to assess the health of newborn children against infant mortality. 1 minute: conducted 1 minute after birth determining how well the baby tolderate the birthing process.

Test to assess the health of newborn children against infant mortality. 5 minute: conducted 5 minutes after birth determining how well the baby is doing outside the womb.

Surgical proceudre where the articular surface of a musculoskeletal joint is replaced, remodeled or realigned by osteotomy or some other procedure

Surgical proceudre where the articular surface of a musculoskeletal joint is replaced, remodeled or realigned by osteotomy or some other procedure

Left Ankle Dorsiflexion: also called plantar flexion – movement of the ankle where the toes are brought closer to the shin decreasing the angle between the dorsum of the foot and the leg. Knee Extended: knee is in a straight position.

The acetabular wall index for assessing anteroposterior femoral head coverage

Acetabular angle: defined as the angle made from line through the Y synchondroses and another line through the superior and inferior points of the iliac portion of teh acetabulum

by report or chart review, yes/no

Is Babinski Reflex present?

can be multiple

single choice

can be multiple- per chart of stated history

in cm

in kg

by report, can be multiple. currently on meds= yes

Indication of whether or not surgery to place a baclofen pump was conducted. Baclofen pump: a programmable device that delivers liquid medication around the clock directly to the intrathecal space in the spinal cord

New baclofen pump: a programmable device that delivers liquid medication around the clock directly to the intrathecal space in the spinal cordReplacement pump: procedure to place a replacement baclofen pumpCatheter revision: positioning of a tube from the surface of the skin to a major veinWound revision: surgery performed to replace or compensate for a failed implant or to correct undesirable sequelae of previous surgery

Calcaneal Osteotomy: an extra-articular, joint-sparing procedure used to correct cavovarus and planovalgus foot deformity

Calcaneal Osteotomy: an extra-articular, joint-sparing procedure used to correct cavovarus and planovalgus foot deformity

Callosity: a thickened and hardened part of the skin; a callus.

Callosity: a thickened and hardened part of the skin; a callus.

Type of relationship that the person who serves as the participant/subject’s primary caregiver has with the participant/subject. (NINDS)

Catheter tip level: location of the tip of the catheter.High cervical: vertebrae from the top of the spine to the base of the skullMid cervical: inferior to the high cervical and superior to the mid thoracic certebraeMid thoracic: middle portion of the spine containing 12 vertebraeIntraventricular: within the ventricles of the CNS

Communication Function Classification System

Indication of which services, clinics, or specialists the patient has seen.

Description of any other services, clinics, or specialists the patient has seen.

Is Clonus present?

can be multiple

Laminectomy: surgery that creates space by removing the lamina the back part of a vertebrae that covers the spinal canal.
If surgery type: Catheter Revision

Surgery type: New Baclofen Pump

Indication of location of catheter tip

Seated spine AP (anterior/posterior): view of the spine from the an anterior/posterior position while the patient is in a seated positionCobb Angle: measure of the curvature of the spine in degrees, Cobb angle of 10 degress is regarded as minimum angulation to define scoliosis Cervical: superior most 7 vertebrae of the spine

Seated spine AP (anterior/posterior): view of the spine from the an anterior/posterior position while the patient is in a seated positionCobb Angle: measure of the curvature of the spine in degrees, Cobb angle of 10 degress is regarded as minimum angulation to define scoliosis Lumbar: inferior most 5 vertebae of the spine

Seated spine AP (anterior/posterior): view of the spine from the an anterior/posterior position while the patient is in a seated positionCobb Angle: measure of the curvature of the spine in degrees, Cobb angle of 10 degress is regarded as minimum angulation to define scoliosis Thoracic: middle 12 vertebrae of the spine

Seated spine AP (anterior/posterior): view of the spine from the an anterior/posterior position while the patient is in a seated positionCobb Angle: measure of the curvature of the spine in degrees, Cobb angle of 10 degress is regarded as minimum angulation to define scoliosis Thoracolumbar: portion of the spine between the cervical spine and the lumbar spine

Seated spine LAT (lateral): view of the spine from the a lateral position while the patient is in a seated position Cobb Angle: measure of the curvature of the spine in degrees, Cobb angle of 10 degress is regarded as minimum angulation to define scoliosis Cervical: superior most 7 vertebrae of the spine

Seated spine LAT (lateral): view of the spine from the a lateral position while the patient is in a seated position Cobb Angle: measure of the curvature of the spine in degrees, Cobb angle of 10 degress is regarded as minimum angulation to define scoliosis Lumbar: inferior most 5 vertebae of the spine

Seated spine LAT (lateral): view of the spine from the a lateral position while the patient is in a seated position Cobb Angle: measure of the curvature of the spine in degrees, Cobb angle of 10 degress is regarded as minimum angulation to define scoliosis Thoracic: middle 12 vertebrae of teh spine

Seated spine LAT (lateral): view of the spine from the a lateral position while the patient is in a seated position Cobb Angle: measure of the curvature of the spine in degrees, Cobb angle of 10 degress is regarded as minimum angulation to define scoliosis Thoracolumbar: portion of the spine between the cervical spine and the lumbar spine

single choice

yes/no. yes= never needs diaper or pull-ups

O Unilateral – left (left hemiplegia)O Unilateral – right (right hemiplegia)O Bilateral symmetric (diplegia)O Bilateral symmetric (quadriplegia)O Bilateral asymmetric – left predominant (left triplegia) O Bilateral asymmetric – right predominant (right triplegia)

Excessive dorsiflexion of calcaneus at the ankle in combination with excessive flexion at the knee and hip leading to a “crouched” position

can be multiple

Date the patient was born. Formmated mm/dd/yyyy. (NINDS)

Stide length is the distance between two successive placements of the same foot. Consists of two step lengths, left and right, each of which is the distance by which the named foot moved forward in front of the other one.

Frog leg lateral view: Patient is in the supine position, with flexed knees, with knee(s) rotated away from the midline of the body

Pelvis AP (anterior/posterior): view of part of the pelvis containing the iliac crest, proximal femur, pubis, ischium, and the great pelvic ring.

yes/no

by report, yes/no. currently on meds= yes

Nasal Mupirocin Pre-Op: ointment placed in the nasal cavity used pre-operatively to reduce risk of infection Measure of duration

indication of whether electrical leads were placed on the surface or intramuscularly on the patient.

Gastrocnemius: Forms the lateral-most portion of the calf muslce. Hip Adductors: muscles in the medial compartment of the thigh comprised of five musclesHip Flexors: located on the ventral portion of the body connecting to the superior portion of the femur

Description of other location of placement of electrical leads

Electrophysiology: test the electrical activity of the heart to find where an arrhythmia is originating. Tetanic Contractions: a sustained muscle contraction evoked when the motor nerve that innervates a skeletal muscle emits action potentials at a high rate. Selective Dorsal Rhizotomy: surgical procedure performed on the lower spinal cord where the nerves are seperated then identified via and electrical stimulation.

Electrophysiology: test the electrical activity of the heart to find where an arrhythmia is originating.
Description of other findings from the electrophysiology.

Date of consent formatted mm/dd/yyyy. Date of enrollment should be used for sites who consent and enroll. If consent is waived, enrollment occurs at the point the first records are entered.

Equinus: upward bending motion of the ankle joint is limitedToe weight bearing: characterized by absence of normal heel-to-floor contact by both feet during gait “toe walking”

At any rate, single choice. Defined by clinician using all available data

Free text, Defined by clinician using all availale data

yes/no

currently yes or currently no only

Type of feeding tube

Proximal Femoral Derotational Osteotomy Fixation: surgical procedure to correct specific deformities of the femur.
Flexible Intramedullary Nails: surgical treatment for pediatric femur fractures- nails are flexible
Locked Intramedullary Nails: surgical treatment for pediatric femur fractures-nails are locked
Plate and screw construct: surgical treatment for pediatric femur fractures- plates and screws are utilized

Proximal Femoral Derotational Osteotomy Fixation: surgical procedure to correct specific deformities of the femur.
Flexible Intramedullary Nails: surgical treatment for pediatric femur fractures- nails are flexible
Locked Intramedullary Nails: surgical treatment for pediatric femur fractures-nails are locked
Plate and screw construct: surgical treatment for pediatric femur fractures- plates and screws are utilized

Proximal Femoral Derotational Osteotomy Fixation: surgical procedure to correct specific deformities of the femur.
Locking Plate: surgical intervention for fractures and osteoporosis
Blade Plate: surigcal intervention utilized for acute femoral fractures and nonunions
Crossed K-Wires: Kirschner wires fixation method of surgical intervention

Proximal Femoral Derotational Osteotomy Fixation: surgical procedure to correct specific deformities of the femur.
Locking Plate: surgical intervention for fractures and osteoporosis
Blade Plate: surigcal intervention utilized for acute femoral fractures and nonunions
Crossed K-Wires: Kirschner wires fixation method of surgical intervention

1=Uses wheelchair or stroller: May stand for transfers and may do some supported stepping. 2=Uses K- walker or other walking frame: w/o assistance 3=Uses two crutches: w/o assistance. 4=uses one crutch or two sticks: w/o assistance. If uses walls, etc. for support please use 4. 5=Independent on level surfaces: does not use walking aids or need assistance. 6=Independent on all surfaces: does not use any waling aids or need assistance when walking, running, climbing stairs, etc. C= does this by crawling only applies to 5 m

1=Uses wheelchair or stroller: May stand for transfers and may do some supported stepping. 2=Uses K- walker or other walking frame: w/o assistance 3=Uses two crutches: w/o assistance. 4=uses one crutch or two sticks: w/o assistance. If uses walls, etc. for support please use 4. 5=Independent on level surfaces: does not use walking aids or need assistance. 6=Independent on all surfaces: does not use any waling aids or need assistance when walking, running, climbing stairs, etc. C= does this by crawling only applies to 5 m

1=Uses wheelchair or stroller: May stand for transfers and may do some supported stepping. 2=Uses K- walker or other walking frame: w/o assistance 3=Uses two crutches: w/o assistance. 4=uses one crutch or two sticks: w/o assistance. If uses walls, etc. for support please use 4. 5=Independent on level surfaces: does not use walking aids or need assistance. 6=Independent on all surfaces: does not use any waling aids or need assistance when walking, running, climbing stairs, etc. C= does this by crawling only applies to 5 m

Forefoot: the front part of the foot, also referred to as the ball of the foot, postioned anterior to the midfoot Abducted: foot abnormaility that causes the front half of the foot (forefoot) to turn outward – away from the midline of the body Adducted: foot abnormaility that causes the front half of the foot (forefoot) to turn inward – toward the midline of the body

Forefoot: the front part of the foot, also referred to as the ball of the foot, postioned anterior to the midfoot Abducted: foot abnormaility that causes the front half of the foot (forefoot) to turn outward – away from the midline of the body Adducted: foot abnormaility that causes the front half of the foot (forefoot) to turn inward – toward the midline of the body

yes/no

free text

free text

free text

Study of kinematics of gait in various planes.

Variation of standard human gait, typically manifesting as a coping mechanism in response to an anatomical impairment

Barefoot walk: observation occurs without shoes on
Orthotic braces: are used to provide support to a weakend body part or joint

GDI: Gait Deviation Index- summary measure that provides a global picture of gait kinematic data

GDI: Gait Deviation Index- summary measure that provides a global picture of gait kinematic data

in weeks

Gross Motor Function Classification System (GMFCS) level

GPS: Gail Profil Scale- root mean square distance between gait data for an individual child and the averaged data from children with no gait pathology

GPS: Gail Profil Scale- root mean square distance between gait data for an individual child and the averaged data from children with no gait pathology

G-Tube: gastrostomy tube is a tube inserted through the abdomen to deliver nutrition directly to the stomach.

Hallux: also referred to as the big toe, the toe closest to the midline of the body. Valgus: Hallux (big toe) tilts over the smaller toes and a bony lump appears on the inside of the foot Dorsal Bunion: bump and/or swelling on the base of the hallux (big toe) on the dorsal (top) surface

Hallux: also referred to as the big toe, the toe closest to the midline of the body. Valgus: Hallux (big toe) tilts over the smaller toes and a bony lump appears on the inside of the foot Dorsal Bunion: bump and/or swelling on the base of the hallux (big toe) on the dorsal (top) surface

would split N/A into equal and not assessed. L/R per history or exam

single choice

single choice

The indicator of whether the participant’s/subject’s hearing is normal, impaired, or is considered to be deaf.

A condition in which the rear of the foot tends to curve outward at the ankle joint.

Type of gait observationBarefoot walk: patient is not wearing shoesWith AFOs: patient is utilizing ankle-foot orthoses No Gait Observation: Observation of gait was not conducted

A condition in which the rear of the foot tends to curve inward at the ankle joint.

Frog leg lateral view: Patient is in the supine position, with flexed knees, with knee(s) rotated away from the midline of the body
Measure of what side of the pelvis is higher in pelvis obliquity

Pelvis AP (anterior/posterior): view of part of the pelvis containing the iliac crest, proximal femur, pubis, ischium, and the great pelvic ring.Measure of what side of the pelvis is higher in pelvis obliquity

Hindfoot Varus- a medial (toward the tibia) inversion of the rearfoot at the subtalar joint.Hinfoot Valgus-malalignment of the hindfoot in which the mid-calcaneal axis is deviated away from the midline of the body.

Hindfoot Varus- a medial (toward the tibia) inversion of the rearfoot at the subtalar joint.Hinfoot Valgus-malalignment of the hindfoot in which the mid-calcaneal axis is deviated away from the midline of the body.

Surgical proceudre where the articular surface of a musculoskeletal joint is replaced, remodeled or realigned by osteotomy or some other procedure

Surgical proceudre where the articular surface of a musculoskeletal joint is replaced, remodeled or realigned by osteotomy or some other procedure

single choice

single choice

Hip stability: ability to maintain center of gacity and produce strength and coordination in hips and truck.
Indication of other type of measure utilized to assess hip stability

Hip stability: ability to maintain center of gacity and produce strength and coordination in hips and truck.
Indication of other type of measure utilized to assess hip stability

Hip stability: ability to maintain center of gacity and produce strength and coordination in hips and truck.
Clinical: clinical evaluation
Fluoroscopy: type of medical imaging that shows a continuous x-ray image on a monitor.
Arthrogram: an z-ray image or picure of te inside of a joint after a contrast medium is injected into the joint.

Hip stability: ability to maintain center of gacity and produce strength and coordination in hips and truck.
Clinical: clinical evaluation
Fluoroscopy: type of medical imaging that shows a continuous x-ray image on a monitor.
Arthrogram: an z-ray image or picure of te inside of a joint after a contrast medium is injected into the joint.

Anti-spastic: used to manage spasticity in upper and lower extremitiesIntramuscular medication: delivering medication deep into the muslces in order to be absorbed into the bloodstream quickly. Intrathecal Baclofen: delivering baclofen directly to the target site in the spinal cord to treat spasticity. Selective Dorsal Rhizotomy: surgical procedure performed on the lower spinal cord where the nerves are seperated then identified via and electrical stimulation. Fusion Surgery: surgery to permanently connect two or more vertebrae in the spine

Indication of patients history of surgeries

yes/no

Identifcation number associated with treatment hospital

Is Hyperreflexia present?

can be multiple

Dystonic Crisis: effects that can occurs after administration of a neuroleptic drug characterized by intermittend spasmodic or sustained involuntary contractions of muscles in the face, neck, trunk, pelvis, extremities, and larynx. Indication of prior ICU admission due to dystonic crisis.

Description of other brain MRI/CT imaging reults

Findings of hip x-ray imaging. Subluxation: a partial dislocation

Finds of hip x-ray imaging. Degree of partial dislocation.

Degree of excessive outward curvature of the spine

Degree of excessive inward curvature of the spine

Degree of abnormal lateral curvature of the spine

Findings of spine MRI/CT imaging.
Kyphosis: excessive outward curvature of the spine
Scoliosis: abnormal lateral curvature of the spine.

Description of other steps taken to reduce the risk of infection

When walking or running the feet turn inward (medially) rather than pointing straight ahead. Also referred to as “pigeon-toe”.

Indication of complications occuring with anesthesia during operation

Procedures conducted during surgery SSI: surgical site infection GA: general anethesia Transfusion: transferring of blood or other fluid

Indication of CSF leak within 3 months of surgery CSF Leak: CFS leaks through a defect in the dura or the skull and out through the nose or ear.

Characteristics observed worsened 6 months post-operatively
Clonus: neurological condtion that creates involuntary muslce contactions restulting in rhythmic shaking movements.
Positive Babinski Response: reflux that occurs when the sole of the foot is stimulated causing the big toe to move upward
Hyperreflexia: involuntary nervous system overreacts to external or bodily stimuli

Indication of any other characteristics observed improvment 6 months post-operatively

Characteristics observed worsened 6 months post-operatively
Clonus: neurological condtion that creates involuntary muslce contactions restulting in rhythmic shaking movements.
Positive Babinski Response: reflux that occurs when the sole of the foot is stimulated causing the big toe to move upward
Hyperreflexia: involuntary nervous system overreacts to external or bodily stimuli

Indication of any other characteristics observed worsened 6 months post-operatively

Also referred to as jump knee:

Deformity of the knee join, knee bends anteriorly

in cm

With knee extended, Starting with ankle in plantarflexion move joint quickly towards dorsiflexion noting spasticity of plantarflexors

With knee extended, Starting with ankle in plantarflexion move joint quickly towards dorsiflexion noting spasticity of plantarflexors

With knee extended, Starting with ankle in plantarflexion move joint quickly towards dorsiflexion noting angle of catch R1 of plantarflexors where 0 degrees is ankle at neutral dorsi/plantarflexion at a right angle

With knee extended Starting with ankle in plantarflexion move joint slowly towards dorsiflexion noting passive end range of motion

With knee flexed, Starting with ankle in plantarflexion move joint quickly towards dorsiflexion noting angle of catch R1 of plantarflexors

With knee flexed Starting with ankle in plantarflexion move joint slowly towards dorsiflexion noting end passive range of motion end range.

With knee flexed, Starting with ankle in plantarflexion move joint quickly towards dorsiflexion noting spasticity of plantarflexors

With knee flexed, Starting with ankle in plantarflexion move joint quickly towards dorsiflexion noting spasticity of plantarflexors

Starting with ankle in dorsiflexion move ankle joint quickly into plantarflexion noting angle of catch R1 of dorsiflexors where 45 degrees is full plantarflexion

Starting with ankle in dorsiflexion move ankle joint slowly into plantarflexion noting passive end range of motion.

Starting with ankle in dorsiflexion move ankle joint quickly into plantarflexion noting spasticity of dorsiflexors

Starting with ankle in dorsiflexion move ankle joint quickly into plantarflexion noting apasticity of dorsiflexors

Starting with hip at 90 degrees of flexion and knee in full flexion opposite leg is flexed 30-45 degrees to shift pelvis to neutral on the table (with hamstring shift hs), move the lower leg quickly towards vertical. R1 is the angle of catch spasticity in hamstrings Anterior popliteal angle refers to the angle vertical to top of shin, where vertical or full knee extension is 0 degrees

Starting with hip at 90 degrees of flexion and knee in full flexion opposite leg is flexed 30-45 degrees to shift pelvis neutral on the table (with hamstring shift hs) move the lower leg slowly towards vertical noting the passive end range of motion. Anterior popliteal angle refers to the angle vertical to top of shin, where vertical or full knee extension is 0 degrees

Starting with hip at 90 degrees of flexion and knee in full flexion opposite leg is extended on the table (without hamstring shift wohs), move the lower leg quickly towards vertical. R1 is the angle of catch spasticity in hamstrings

Starting with hip at 90 degrees of flexion and knee in full flexion opposite leg is extended on the table (without hamstring shift wohs) move the lower leg slowly towards veritcal noting the passive end range of motion R2

Starting with hip at 90 degrees of flexion and knee in full flexion opposite leg is flexed 30-45 degrees to shift pelvis to neutral on the table (with hamstring shift hs), move the lower leg quickly towards vertical assessing spasticity in the hamstrings .

Starting with hip at 90 degrees of flexion and knee in full flexion opposite leg is flexed 30-45 degrees to shift pelvis to neutral on the table (with hamstring shift hs), move the lower leg quickly towards vertical assessing spasticity in the hamstrings .

Starting with hip at 90 degrees of flexion and knee in full flexion opposite leg is extended on the table (without hamstring shift wohs), move the lower leg quickly towards vertical assessing spasticity in hamstrings

Starting with hip at 90 degrees of flexion and knee in full flexion opposite leg is extended on the table (without hamstring shift wohs), move the lower leg quickly towards vertical assessing spasticity in hamstrings

End range of motion when limb moved passively Note 0 degrees is full extension and +5 would be hyperextension

End range of motion when limb moved passively Note 0 degrees is where elbow is in full extension and full flexion is 145 degrees

Moving limb quickly into abduction measuring angle of catch of adductors Supine with hip and knees extended

Moving limb slowly into abduction measuring end range of passive motion 60 degrees is full hip abduction Supine with hip and knees extended

Moving limb quickly into hip abduction this is the spasticity in the hip adductor muscle Supine with hip and knees extended

When moving the limb quickly into hip extension you are assessing spasticity in hip flexors

Moving the limb slowly into hip extension this is the end range of passive motion where 30 degrees is full hip extension.

Moving limb slowly towards hip external rotation this is PROM

When moving the limb quickly into hip extension you are assessing spasticity in hip flexors

Moving the limb quickly into hip flexion assessing spasticity in the hip extensors

Moving the limb slowly into hip flexion this is the end range of passive motion where 135 degrees is full hip flexion

Moving limb slowly towards hip internal rotation this is PROM

When moving the limb quickly into hip extension you are assessing spasticity in hip flexors

move leg quickly into knee extension assessing tone in the knee while moving knee into extension

Assess for knee flexion contracture, where 0 degrees if full knee extension, +5 is hyper extension at knee

Starting with knee in full extension (0 degrees) move leg quickly into knee flexion assesses angle of catch R1 in knee extensors where 0 degrees is knee in full extension

Starting with knee in full extension (0 degrees) move leg slowly into knee flexion noting passive end range of motion and 150 is full knee flexion.

Starting with knee in full extension (0 degrees) move leg quickly into knee flexion assessing tone in the knee extensors while moving knee into flexion

Starting with knee in full extension (0 degrees) move leg quickly into knee flexion assessing tone in the knee extensors while moving knee into flexion

End range of motion when limb moved passively into abduction where full shoulder abduction is 180 degrees.

End range of motion when limb moved passively into shoulder extension where 30 degrees is full shoulder extensioned passively

End range of motion when limb moved passively into flexion where full shoulder flexion is 180 degrees

End range of motion when thumb is passively abducted and 90 degress is full thumb abduction.

End range of motion when limb moved slowly passively Note 0 degrees is wrist at neutral flex/ext and 55 degrees is full extension

End range of motion when limb moved slowly passively Note 0 degrees is wrist at neutral flex/ext and 80 degrees is full fexion

single choice

single choice

Mupirocin: ointment to reduce risk of infectionG-Tube: gastrostomy tube is a tube inserted through the abdomen to deliver nutrition directly to the stomach. Trach:Surgical procedure to create an opening through the trachea to provide an airwayMitrofanoff: tunnel between the bladder and the ouside of the body to pass urine through a catheter.

What happened to GMFCS , I assume someone else is doing this.

can be multiple- per chart or stated history

free text- per chart or stated history

Surgical lenthening of the hamstrings with the goal of increasing knee extension at initial contact. Semitendinosis: one of the muscles making up the hamstrings located at the posterior and medial aspect of the thigh Semimembranous: most medial of the three hamstring muscles lying postermedially in the thigh and deep to the semitendinosus. Gracilis: most superficial muscle on the medial side of the thigh

Surgical lenthening of the hamstrings with the goal of increasing knee extension at initial contact.
Semitendinosis: one of the muscles making up the hamstrings located at the posterior and medial aspect of the thigh
Semimembranous: most medial of the three hamstring muscles lying postermedially in the thigh and deep to the semitendinosus.
Gracilis: most superficial muscle on the medial side of the thigh

Are we talking about respiratory medicines?

Can be multiple. Must have “official diagnosis”. If on meds = yes

free text

can be multiple

free text

Midfoot: middle of the foot componsed of bones, tendons, and liagments, connecting the forefoot and the hindfoot.Collapsed: foot abnormaility characterized by sagging or flattening of the arch/midfoot Cavus: foot abnormality characterized by atypically high medial longitudinal arch- commonly features an inverted hindfoot, an adducted forefoot, and dorsal contracture of the toes

Midfoot: middle of the foot componsed of bones, tendons, and liagments, connecting the forefoot and the hindfoot.Collapsed: foot abnormaility characterized by sagging or flattening of the arch/midfoot Cavus: foot abnormality characterized by atypically high medial longitudinal arch- commonly features an inverted hindfoot, an adducted forefoot, and dorsal contracture of the toes

Frog leg lateral view: Patient is in the supine position, with flexed knees, with knee(s) rotated away from the midline of the body Migration Percentage: as a measure of hip displacement – represents the portion of the ossified femoral head that is not covered by the ossififed acetabular roof

Frog leg lateral view: Patient is in the supine position, with flexed knees, with knee(s) rotated away from the midline of the body Migration Percentage: as a measure of hip displacement – represents the portion of the ossified femoral head that is not covered by the ossififed acetabular roof

Pelvis AP (anterior/posterior): view of part of the pelvis containing the iliac crest, proximal femur, pubis, ischium, and the great pelvic ring. MIgration Percentage: as a measure of hip displacment- represents the protion of the ossified femoral head that is not covered by the ossified acetabular roof

Pelvis AP (anterior/posterior): view of part of the pelvis containing the iliac crest, proximal femur, pubis, ischium, and the great pelvic ring. MIgration Percentage: as a measure of hip displacment- represents the protion of the ossified femoral head that is not covered by the ossified acetabular roof

Age when the participant/subject achieved or experienced the specific clinical event or milestone of crawling (NINDS)

Age when the participant/subject achieved or experienced the specific clinical event or milestone of rolling over (NINDS)

Age when the participant/subject achieved or experienced the specific clinical event or milestone of sitting (NINDS)

Age when the participant/subject achieved or experienced the specific clinical event or milestone of standing (NINDS)

Age when the participant/subject achieved or experienced the specific clinical event or milestone of walking (NINDS)

can be multiple

free text

no, twins, triplets, quadruplets, quintuplets, sextuplets (at least on NCH forms)

Clinician defined. Single choice. If more than one= Mixed

Free text

Indication of organisms present

single choice

single choice

yes/no

Does/did the participant/subject have any of the following neurodevelopmental conditions? Can be multiple. ADHD and Autism= Has an “official” diagnosis. Hydrocephalus does NOT include Hydrocephalus ex-vacuo (Have Jeff weigh in on this)

Free text, Defined by clinician using all availale data

Subfascial: located beneath the dermis of the skin Subcutaneous: the innermost layer of skin made up of fat and connective tissues.

Indication of new baclofen pump size in mL

Indicator of new catheter type that was placed

The new replacement pump placement:
Subfascial: located beneath the dermis of the skin
Subcutaneous: the innermost layer of skin made up of fat and connective tissues.

Indicator of replacement pump size measured in mL

yes/no. Nissen unwrapped= yes

Rootlet: a nerve root is the intial segment of the nerve leaving the central nervous system. Indication of number of left rootlets tested in the patient

Rootlet: a nerve root is the intial segment of the nerve leaving the central nervous system. Indication of number of left rootlets tested in the patient

Indicator of previous catheter type that was removed

Indicator of previous pump size measured in mL

Indication of presence of an open wound

Indication of operating room number

single choice

single choice

can be multiple

free text

per child or parent

can be multiple

free text

in kg/m2

Category of ethnicity the participant/subject most closely identifies with. (NINDS)

Self-reported gender of the participant/subject. Gender is the socially constructed identity of sex. Gender is equated with phenotypic sex. Gender may differ from the sex of an individual determined genetically. Unspecified is defined as Undifferentiated/Indeterminant/Intersex. (NINDS)

in cm

Category of race the participant/subject most closely identifies with

in C

in kg

Pelvis AP (anterior/posterior): view of part of the pelvis containing the iliac crest, proximal femur, pubis, ischium, and the great pelvic ring.Acetabular angle: defined as the angle made from line through the Y synchondroses and another line through the superior and inferior points of the iliac portion of the acetabulum

Pelvis AP (anterior/posterior): view of part of the pelvis containing the iliac crest, proximal femur, pubis, ischium, and the great pelvic ring.The acetabular wall index for assessing anteroposterior femoral head coverage

Surgical procedure involving reshaping a shallow hip socket so that it accommodates the ball of the hip joint- the femoral head.

Surgical procedure involving reshaping a shallow hip socket so that it accommodates the ball of the hip joint- the femoral head.

Frog leg lateral view: Patient is in the supine position, with flexed knees, with knee(s) rotated away from the midline of the bodyPelvic Obliquity: Inequal height of the sides of the pelvis

Pelvis AP (anterior/posterior): view of part of the pelvis containing the iliac crest, proximal femur, pubis, ischium, and the great pelvic ring.Pelvic Obliquity: Inequal height of the sides of the pelvis

yes/no

Is Poor Coordination present?

can be multiple

Description of antibiotics delivered post-operatively

Indication of type of antibiotics administered post-operatively

Indication of type of complication occuring in the lower extremities.

Hip Spica Cast: body cast used to keep hips and legs from moving post-operatively, non weight bearing.

Indication of method of lower extremity immobilization post-operatively.

Description of any other type of lower extremity immobilization post-operatively that was not indicated above.

Indication of length of stay in neurology measured in days.

Indicaiton of how long the patient stayed in the hospital following orthopedic intervention

Method of managament post-operatively.

Indication of pain medication utilized immediately post-operatively.

Description of an other type of pain control utilized post-operatively.

Type of pain control utilized post-operatively

Indication of post-operative blood or fluid transfusion

Indication of antibiotics utilized within 60 minutes of incision

type of intravenous antibiotic utilized pre-operatively

CHG (Dynahex)/Hibiclens Bath at Home: used to clean the skin to prevent infection CHG Wipes in Pre-Op: Chlorhexidine Gluconate wipes used pre-operatively to prevent infection Nasal Mupirocin Pre-Op: ointment placed in the nasal cavity used pre-operatively to reduce risk of infection Staph Screen: nasal swab to test for staphyloccocus aureusSkin Integrity Screen: evaluation of integrity of the patient’s skin

Characteristics observed prior to surgery. Clonus: repeated, rhythmic, muscular spasmsPositive Babinski Response: reflux that occurs when the sole of the foot is stimulated causing the big toe to move upward Hyerflexia:involuntary nervous system reacted to external or bodily stimuli

Description of other characteristics observed prior to surgery.

Indication of what preventative steps were taken during pre-preparation for surgery

Indication of prior infection of baclofen pump.

Spinal fusion: surgery to permanently connect two or more vertebrae in the spine
G-Tube: gastrostomy tube is a tube inserted through the abdomen to deliver nutrition directly to the stomach.
Trach:Surgical procedure to create an opening through the trachea to provide an airway
Mitrofanoff: tunnel between the bladder and the ouside of the body to pass urine through a catheter.
ACE: Antegrade continent enema, uses the apendix or small piece of intestine to create a tube through an enema is given.

Indication of operating room number

Description of other procedures conducted.

Indication of surgeon conducting procedure

Indication of surgeon conducting procedure

Indication of surgeon conducting procedure

yes/no

yes/no

Femoral anteversion: inward twisting of the thigh bone (femur), femoral anteversion causes the knees and feet to turn inward measured in degrees

Femoral anteversion: inward twisting of the thigh bone (femur), femoral anteversion causes the knees and feet to turn inward measured in degrees

Hip external rotation: the twisting movment of the thigh outward from the hip joint- during this meausre the patient’s foot is rotated toward the midline of the body measured in degrees

Hip external rotation: the twisting movment of the thigh outward from the hip joint- during this meausre the patient’s foot is rotated toward the midline of the body measured in degrees

Hip internal rotation: the twisting movment of the thigh inward from the hip joint- during this meausre the patient’s foot is rotated away from the midline of the body measured in degrees

Hip internal rotation: the twisting movment of the thigh inward from the hip joint- during this meausre the patient’s foot is rotated away from the midline of the body measured in degrees

Tibial torsion: an inward twisting of the shinbones (tibia) causing the feet to turn inward Bimalleolar Axis: drawn in a cut just below the tibial pilon’s articular surface with the medial and lateral and malledoli and talar dome eviden btween the centers of the dense surfaces of the malleoli measured in degrees

Tibial torsion: an inward twisting of the shinbones (tibia) causing the feet to turn inward Bimalleolar Axis: drawn in a cut just below the tibial pilon’s articular surface with the medial and lateral and malledoli and talar dome eviden btween the centers of the dense surfaces of the malleoli measured in degrees

Tibial torsion: an inward twisting of the shinbones (tibia) causing the feet to turn inward Thigh foot angle: assesing the angle between the femur axis and foot axis measured in degrees

Tibial torsion: an inward twisting of the shinbones (tibia) causing the feet to turn inward Thigh foot angle: assesing the angle between the femur axis and foot axis measured in degrees

Coleman block test: evaulates hindfoot flexibility and pronation of the forefoot while patient steps down onto blockIf heel varus corrects while the patient is standing on the block, hindfoot is considered flexible if not, hindfoot is considered to be rigid

Coleman block test: evaulates hindfoot flexibility and pronation of the forefoot while patient steps down onto blockIf heel varus corrects while the patient is standing on the block, hindfoot is considered flexible if not, hindfoot is considered to be rigid

Tibial segment length difference: the length from the ankle joint to the knee joint, variation between each leg

Tibial segment length difference: the length from the ankle joint to the knee joint, variation between each leg

Duncan-Ely test is utilized to assess rectus femoris (a quad muscle) spasticity by passively flexing the knee rapidly while the patient lies in a prone position (ventral side down). R1- indicates a first catch felt during quick passive stretching

Duncan-Ely test is utilized to assess rectus femoris (a quad muscle) spasticity by passively flexing the knee rapidly while the patient lies in a prone position (ventral side down). R1- indicates a first catch felt during quick passive stretching

Duncan-Ely test is utilized to assess rectus femoris (a quad muscle) spasticity by passively flexing the knee rapidly while the patient lies in a prone position (ventral side down). R2- indicates maximum passive range

Duncan-Ely test is utilized to assess rectus femoris (a quad muscle) spasticity by passively flexing the knee rapidly while the patient lies in a prone position (ventral side down). R2- indicates maximum passive range

Proximal Femoral Derotational Osteotomy Fixation: surgical procedure to correct specific deformities of the femur.
Intertrochanteric: type of fracture of the hip and femur between the greater and lesser trochanters
Subtrochanteric: type of fracture of the hip and femur in the area from lesser trochanter to 5 cm distal.

Proximal Femoral Derotational Osteotomy Fixation: surgical procedure to correct specific deformities of the femur.
Intertrochanteric: type of fracture of the hip and femur between the greater and lesser trochanters
Subtrochanteric: type of fracture of the hip and femur in the area from lesser trochanter to 5 cm distal.

Pseudomeningocele: extradural cerebrospinal fluid collection arising from a dural defect. Indication of presense within 3 months of surgery

Indicaiton of whether or not physical therapy was conducted post-operatively

Frequency that patient recieved inpatient physical therapy measured in days per week or amount of sessions per day

Frequency that patient recieved outpatient physical therapy measured in days per week or amount of sessions per day

Indication of reason physical therapy was not completed.

Length of time patient particpated in inpactient physyical therapy measure in weeks.

Length of time patient particpated in outpatient physyical therapy measured in weeks.

Foot AP: view of the foot from an anterior/posterior position Date imaging was collected

Foot LAT: view of the foot from a lateral position Date imaging was collected

Frog leg lateral view: Patient is in the supine position, with flexed knees, with knee(s) rotated away from the midline of the body Date imaging was collected

Knee AP: view of the knee from an anterior/posterior position Date imaging was collected

Knee LAT: view of the knee from a lateral position Date imaging was collected

Pelvis AP (anterior/posterior): view of part of the pelvis containing the iliac crest, proximal femur, pubis, ischium, and the great pelvic ring. Date imaging was collected

Seated spine AP (anterior/posterior): view of the spine from the an anterior/posterior position while the patient is in a seated position Date imaging was collected

Seated spine LAT (lateral): view of the spine from the a lateral position while the patient is in a seated position Date imaging was collected

Indication of type/location of radiograph (also known as x-ray) utilized.
AP: anterior/posterior
LAT: lateral

CSF Leak: CFS leaks through a defect in the dura or the skull and out through the nose or ear.Lack of efficacy: the lack of ability to produce the desired result Culture-positive: blood culture that is posiive indicating the presense of infection

Indication of reason for pump replacement

CSF Leak: CFS leaks through a defect in the dura or the skull and out through the nose or ear. Pseudomeningocele: an extradural cerebrospinal fluid collection arising from a dural defectOcclusion: blockage

Dehiscence: a surgical complication in which a would ruptures along a surgical incision. Exposed Hardware: a complication involving inserted hardware becoming exposedCSF Leak: CFS leaks through a defect in the dura or the skull and out through the nose or ear. Culture-positive: blood culture that is posiive indicating the presense of infection

by report, yes/no

With knee extended, Starting with ankle in plantarflexion move joint quickly towards dorsiflexion noting angle of catch R1 of plantarflexors where 0 degrees is neutral dorsi/plantarflexion

With knee extended Starting with ankle in plantarflexion move joint slowly towards dorsiflexion noting passive end range of motion

With knee flexed, Starting with ankle in plantarflexion move joint quickly towards dorsiflexion noting anlge of catch R1 of plantarflexors where 45 degrees is full dorsiflexion

With knee flexed Starting with ankle in plantarflexion move joint slowly towards dorsiflexion noting passive end range of motion where 45 degrees is full dorsiflexion.

Starting with ankle in dorsiflexion move ankle joint quickly into plantarflexion noting angle of catch R1 of dorsiflexors where 45 degrees is full plantarflexion.

Starting with ankle in dorsiflexion move ankle joint slowly into plantarflexion noting passive end range of motion where 45 degrees is full plantarflexion.

Starting with hip at 90 degrees of flexion and knee in full flexion opposite leg is flexed 30-45 degrees to shift pelvis to neutral on the table (with hamstring shift hs), move the lower leg quickly towards vertical. noting the angle of catch R1 in hamstrings Anterior popliteal angle refers to the angle vertical to top of shin, where vertical or full knee extension is 0 degrees

Starting with hip at 90 degrees of flexion and knee in full flexion opposite leg is flexed 30-45 degrees to shift pelvis neutral on the table (with hamstring shift hs) move leg slowly to vertical noting passive end range of motion/flexibility of hamstrings. Anterior popliteal angle refers to the angle vertical to top of shin, where vertical or full knee extension is 0 degrees

Starting with hip at 90 degrees of flexion and knee in full flexion opposite leg is extended on the table (without hamstring shift wohs), move the lower leg quicklytowards vertical. R1 is the angle of catch spasticity in hamstrings

Starting with hip at 90 degrees of flexion and knee in full flexion opposite leg is extended on the table (without hamstring shift wohs) move the lower leg slowly towards veritcal noting the passive end range of motion R2

End range of motion when limb moved passively Note 0 degrees is full extension and +5 would be hyperextension

End range of motion when limb moved passively Note 0 degrees is where elbow is in full extension and full flexion is 145 degrees

Moving limb quickly into abduction measuring angle of catch of adductors Assessed in Supine with hip and knees extended

Moving limb slowly into abduction measuring end range of passive motion 60 degrees is full hip abduction Assessed in Supine with hip and knees extended

When moving the limb quickly into hip extension you are assessing spasticity in hip flexors

Moving the limb slowly into hip extension this is the end range of passive motion where 30 degrees is full hip extension.

Moving limb slowly towards hip external rotation this is PROM

When moving the limb quickly into hip flexion you are assessing spasticity in hip extensors

Moving the limb slowly into hip flexion this is the end range of passive motion where 135 degrees is full hip flexion

Moving limb slowly towards hip internal rotation this is PROM

move leg quickly into knee extension assessing tone in the knee while moving knee into extension

Assess for knee flexion contracture, where 0 degrees if full knee extension, +5 is hyper extension at knee

Starting with knee in full extension (0 degrees) move leg quickly into knee flexion noting angle of catch R1 while moving knee into flexion

Starting with knee in full extension (0 degrees) move leg slowly into knee flexion noting passive end range of motion where 150 is full knee flexion.

End range of motion when limb moved passively into abduction where full shoulder abduction is 180 degrees.

End range of motion when limb moved passively into shoulder extension where 30 degrees is full shoulder extensioned passively

End range of motion when limb moved passively where full shoulder flexion is 180 degrees

End range of motion when thumb is passively abducted and 90 degress is full thumb abduction.

End range of motion when limb moved slowly passively Note 0 degrees is wrist at neutral flex/ext and 55 degrees is full extension

End range of motion when limb moved slowly passively Note 0 degrees is wrist at neutral flex/ext and 80 degrees is full fexion

Indicator of whether birth happened vaginally or via ceasarian section.

With knee extended, Starting with ankle in plantarflexion move joint quickly towards dorsiflexion noting spasticity of plantarflexors

With knee extended, Starting with ankle in plantarflexion move joint quickly towards dorsiflexion noting spasticity of plantarflexors

With knee flexed, Starting with ankle in plantarflexion move joint quickly towards dorsiflexion noting spasticity of plantarflexors

With knee flexed, Starting with ankle in plantarflexion move joint quickly towards dorsiflexion noting spasticity of plantarflexors

Starting with ankle in dorsiflexion move ankle joint quickly into plantarflexion noting apasticity of dorsiflexors

Starting with ankle in dorsiflexion move ankle joint quickly into plantarflexion noting apasticity of dorsiflexors

Starting with hip at 90 degrees of flexion and knee in full flexion opposite leg is flexed 30-45 degrees to shift pelvis to neutral on the table (with hamstring shift hs), move the lower leg quickly towards vertical assessing spasticity in the hamstrings .

Starting with hip at 90 degrees of flexion and knee in full flexion opposite leg is flexed 30-45 degrees to shift pelvis to neutral on the table (with hamstring shift hs), move the lower leg quickly towards vertical assessing spasticity in the hamstrings .

Starting with hip at 90 degrees of flexion and knee in full flexion opposite leg is extended on the table (without hamstring shift wohs), move the lower leg quickly towards vertical assessing spasticity in hamstrings

Starting with hip at 90 degrees of flexion and knee in full flexion opposite leg is extended on the table (without hamstring shift wohs), move the lower leg quickly towards vertical assessing spasticity in hamstrings

Moving the limb quickly into hip abduction noting the spasticity grade of the adductors. Supine with hip and knees extended

Moving the limb quickly into hip abduction noting the spasticity grade of the adductors. Assessed in Supine with hip and knees extended

When moving the limb quickly into hip extension you are assessing spasticity in hip flexors

When moving the limb quickly into hip extension you are assessing spasticity in hip flexors

Starting with knee in full extension (0 degrees) move leg quickly into knee flexion assessing tone in the knee extensors while moving knee into flexion

Starting with knee in full extension (0 degrees) move leg quickly into knee flexion assessing tone in the knee extensors while moving knee into flexion

by report, single response

I thought we were getting rid of this one?

Characterized by hypertonia and flexion in the legs, hips, and pelvis accompanied by extreme adduction leading to the knees and thighs hitting or crossing

Characteristics observed improvment 6 moths post-operatively
Clonus: neurological condtion that creates involuntary muslce contactions restulting in rhythmic shaking movements.
Positive Babinski Response: reflux that occurs when the sole of the foot is stimulated causing the big toe to move upward
Hyperreflexia: involuntary nervous system overreacts to external or bodily stimuli

Indication of any other characteristics observed improvment 6 months post-operatively

Indication of whether or not selective dorsal rhizotomy was performed. Selective Dorsal Rhizotomy: surgical procedure performed on the lower spinal cord where the nerves are seperated then identified via and electrical stimulation.

Anti-spastic: used to manage spasticity in upper and lower extremities
Intramuscular medication: delivering medication deep into the muscles in order to be absorbed into the bloodstream quickly.
Intrathecal Baclofen: delivering baclofen directly to the target site in the spinal cord to treat spasticity.
Fusion Surgery: surgery to permanently connect two or more vertebrae in the spine

Indication of any other treatment conducted since spinal intervention

Characteristics observed worsened 6 months post-operatively
Clonus: neurological condtion that creates involuntary muslce contactions restulting in rhythmic shaking movements.
Positive Babinski Response: reflux that occurs when the sole of the foot is stimulated causing the big toe to move upward
Hyperreflexia: involuntary nervous system overreacts to external or bodily stimuli

Indication of any other characteristics observed worsened 6 months post-operatively

Awaiting new seizure questions from Adam Ostendorf

can be multiple

free text

Kyphosis: excessive outward curvature of the spine, causing hunching of the back Nonstructural curves are not fixed, but flexible and readily corrected with bending

Lordosis: excessive inward curvature of the spine Nonstructural curves are not fixed, but flexible and readily corrected with bending

Scoliosis: abnormal lateral curvature of the spine Nonstructural curves are not fixed, but flexible and readily corrected with bending

Indicator of which side of the pelvis is higher in the presence of pelvic obliquity

Description of location of kyphosis (excessive outward curavture of the spine, causing hunching of the back) Cervical: superior most 7 vertebrae of the spineThoracic: middle 12 vertebrae of teh spine Lumbar: inferior most 5 vertebae of the spine

Description of location of lordosis (excessive inward curvature of the spine)Cervical: superior most 7 vertebrae of the spine Thoracic: middle 12 vertebrae of teh spine Lumbar: inferior most 5 vertebae of the spine

Description of location of scoliosis (abnormal lateral curvature of the spine)Cervical: superior most 7 vertebrae of the spine Thoracic: middle 12 vertebrae of teh spine Lumbar: inferior most 5 vertebae of the spine Thoracolumbar: portion of the spine between the cervical spine and the lumbar spine

Indicator of presence of kyphosis (excessive outward curvature of the spine, causing hunching of the back)

Indicator of presence of lordosis (excessive inward curvature of the spine)

Indicator of presence of pelvic obliquity (also referred to as pelvic tilt or rotation- can be caused by leg length inequality)

Indicator of presence of scoliosis (abnormal lateral curvature of the spine)

Frog leg lateral view: Patient is in the supine position, with flexed knees, with knee(s) rotated away from the midline of the body
Femoral Head Sphericity: femoral head- the superior most portion of the femor, where attachemnt is made to the hip joing. Measure of spherical shape of the head of the femur.

Frog leg lateral view: Patient is in the supine position, with flexed knees, with knee(s) rotated away from the midline of the body
Femoral Head Sphericity: femoral head- the superior most portion of the femor, where attachemnt is made to the hip joing. Measure of spherical shape of the head of the femur.

Pelvis AP (anterior/posterior): view of part of the pelvis containing the iliac crest, proximal femur, pubis, ischium, and the great pelvic ring.
Femoral Head Sphericity: femoral head- the superior most portion of the femor, where attachemnt is made to the hip joing. Measure of spherical shape of the head of the femur.

Pelvis AP (anterior/posterior): view of part of the pelvis containing the iliac crest, proximal femur, pubis, ischium, and the great pelvic ring.
Femoral Head Sphericity: femoral head- the superior most portion of the femor, where attachemnt is made to the hip joing. Measure of spherical shape of the head of the femur.

Indication of type of spinal deformality detected.

Description or comment on spinal deformailty detected.

Indication of date spinal abnormality was assessed

Spinal fusion: surgery to permanently connect two or more vertebrae in the spine

yes/no

can be multiple

Utilization of supported walking as an exercise to improve gait

Indication of whether or not double gloving was utilized

Indication of whether or not waterless hand scrub was utilized

Reason for surgeryPoor spasticity: muscles are continuously contractedEase of ADLs: improve patients ability to participate in activities of daily living. Poor dystonia: movement disorder in which a person’s muscles contract uncontrollably

Description of any other reasons for patient’s surgeries

can be multiple

Tendo Achilles Lengthening: surgical procedure to lengthen the achilles tendon to allow the patient to walk flat-footed.

Tendo Achilles Lengthening: surgical procedure to lengthen the achilles tendon to allow the patient to walk flat-footed.

How many seconds to walk 10 meters at self selected speed (average of 3 trials In usual footwear, orthoses and assitive device. Report seconds, have epic calculate seconds per 1 meter.

A twist in the tibia bone of the lower leg bringing the knee and ankle out of alignment. Surgical procedure involving cracking a bone to correct rotation of tibia.
Proximal: closer to the medial portion of the body or point of attachment
Diaphyseal: midsection of the tibia, also known as shaft or body
Distal: further from the medial portion of the body, away from the point of attachment

A twist in the tibia bone of the lower leg bringing the knee and ankle out of alignment. Surgical procedure involving cracking a bone to correct rotation of tibia.
Proximal: closer to the medial portion of the body or point of attachment
Diaphyseal: midsection of the tibia, also known as shaft or body
Distal: further from the medial portion of the body, away from the point of attachment

Indication of length of time patient was kept flat following operation measured in hours.

yes/no

yes/no

Method of transfussionCell Saver: recovering blood lost during surgery and re-infusing it into the patient Autologous: recovering blood lost during surgery and re-infusing it into the patient Directed donor: Someone who has a relationship to the patient donates blood Banked blood: Blood recieved from a blood bank

Triradiate: the “Y”-shaped epiphyseal plate, evaluating the position of the triradate cartilage of the pelvis

mm/dd/yyyy

free text

can be multiple

by report, can be multiple. currently on meds= yes

The indicator of whether the participant’s/subject’s vision is normal, impaired, or is considered to be blind.

in cm

Weight of patient measured in kg

Length of patient measured in cm

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Laminectomy: surgery that creates space by removing the lamina the back part of a vertebrae that covers the spinal canal.
If surgery type: New Baclofen Pump

Surgery type: Catheter Revision

Left Elbow Extension: movement that increases the angle between ulna and humerus.

Left Elbow Flexion: movement that decreases the angle between ulna and humerus.

single choice
Right Elbow Extension: movement that increases the angle between ulna and humerus. 0,0: no increase in tone; 1,1 slight increase in tone giving a catch when the limb was moved; 2,2 more marked increase in tone but limb easily flexed; 3,3 considerable increase in tone- passive movement difficult; 4,4 limb rigid

single choice
Right Elbow Flexion: movement that descreases the angle between ulna and humerus. 0,0: no increase in tone; 1,1 slight increase in tone giving a catch when the limb was moved; 2,2 more marked increase in tone but limb easily flexed; 3,3 considerable increase in tone- passive movement difficult; 4,4 limb rigid

Left Hip Abduction: movement of the leg away from the mid-line of the body – movement used when stepping side to side.

single choice
Left Hip Extension: posterior movement of the leg away from the body. 0,0: no increase in tone; 1,1 slight increase in tone giving a catch when the limb was moved; 2,2 more marked increase in tone but limb easily flexed; 3,3 considerable increase in tone- passive movement difficult; 4,4 limb rigid

single choice
Left Hip External Rotation: movement of the femur rotating within the hip joint away from the mid-line of the body, turning the knee outward. 0,0: no increase in tone; 1,1 slight increase in tone giving a catch when the limb was moved; 2,2 more marked increase in tone but limb easily flexed; 3,3 considerable increase in tone- passive movement difficult; 4,4 limb rigid

single choice
Left Hip Flexion: movement bringing the leg closer towards the body in the sagittal plane- closer to the torso. 0,0: no increase in tone; 1,1 slight increase in tone giving a catch when the limb was moved; 2,2 more marked increase in tone but limb easily flexed; 3,3 considerable increase in tone- passive movement difficult; 4,4 limb rigid

single choice
Left Hip Internal Rotation: also called medial rotation- movement of the femur rotating within the hip joint toward the mid-line of the body. 0,0: no increase in tone; 1,1 slight increase in tone giving a catch when the limb was moved; 2,2 more marked increase in tone but limb easily flexed; 3,3 considerable increase in tone- passive movement difficult; 4,4 limb rigid

single choice
Right Hip Abduction: movement of the leg away from the midline of the body – movement used when stepping side to side. 0,0: no increase in tone; 1,1 slight increase in tone giving a catch when the limb was moved; 2,2 more marked increase in tone but limb easily flexed; 3,3 considerable increase in tone- passive movement difficult; 4,4 limb rigid

single choice
Right Hip Extension: posterior movement of the leg away from the body. 0,0: no increase in tone; 1,1 slight increase in tone giving a catch when the limb was moved; 2,2 more marked increase in tone but limb easily flexed; 3,3 considerable increase in tone- passive movement difficult; 4,4 limb rigid

single choice
Right Hip External Rotation: movement of the femur rotating within the hip joint away from the mid-line of the body, turning the knee outward. 0,0: no increase in tone; 1,1 slight increase in tone giving a catch when the limb was moved; 2,2 more marked increase in tone but limb easily flexed; 3,3 considerable increase in tone- passive movement difficult; 4,4 limb rigid

single choice
Right Hip Flexion: movement bringing the leg closer towards the body in the sagittal plane- closer to the torso. 0,0: no increase in tone; 1,1 slight increase in tone giving a catch when the limb was moved; 2,2 more marked increase in tone but limb easily flexed; 3,3 considerable increase in tone- passive movement difficult; 4,4 limb rigid

single choice
Right Hip Internal Rotation: also called medial rotation- movement of the femur rotating within the hip joint toward the mid-line of the body. 0,0: no increase in tone; 1,1 slight increase in tone giving a catch when the limb was moved; 2,2 more marked increase in tone but limb easily flexed; 3,3 considerable increase in tone- passive movement difficult; 4,4 limb rigid

single choice
Left Knee Extension: movement of straightening the leg. 0,0: no increase in tone; 1,1 slight increase in tone giving a catch when the limb was moved; 2,2 more marked increase in tone but limb easily flexed; 3,3 considerable increase in tone- passive movement difficult; 4,4 limb rigid

single choice
Left Knee Flexion: the bending of the knee to bring the foot toward the posterior thigh. 0,0: no increase in tone; 1,1 slight increase in tone giving a catch when the limb was moved; 2,2 more marked increase in tone but limb easily flexed; 3,3 considerable increase in tone- passive movement difficult; 4,4 limb rigid

single choice
Right Knee Extension: movement of straightening the leg. 0,0: no increase in tone; 1,1 slight increase in tone giving a catch when the limb was moved; 2,2 more marked increase in tone but limb easily flexed; 3,3 considerable increase in tone- passive movement difficult; 4,4 limb rigid

single choice
Right Knee Flexion: the bending of the knee to bring the foot toward the posterior thigh. 0,0: no increase in tone; 1,1 slight increase in tone giving a catch when the limb was moved; 2,2 more marked increase in tone but limb easily flexed; 3,3 considerable increase in tone- passive movement difficult; 4,4 limb rigid

single choice
Left Wrist Extension: hand is tilted around wrist joint toward dorsal surface or back of hand. 0,0: no increase in tone; 1,1 slight increase in tone giving a catch when the limb was moved; 2,2 more marked increase in tone but limb easily flexed; 3,3 considerable increase in tone- passive movement difficult; 4,4 limb rigid

single choice
Left Writst Flexion: hand is tilted around wrist joint toward palmar surface of forearm. 0,0: no increase in tone; 1,1 slight increase in tone giving a catch when the limb was moved; 2,2 more marked increase in tone but limb easily flexed; 3,3 considerable increase in tone- passive movement difficult; 4,4 limb rigid

single choice
Right Wrist Extension: hand is tilted around wrist joint toward dorsal surface or back of hand. 0,0: no increase in tone; 1,1 slight increase in tone giving a catch when the limb was moved; 2,2 more marked increase in tone but limb easily flexed; 3,3 considerable increase in tone- passive movement difficult; 4,4 limb rigid

single choice
Right Writst Flexion: hand is tilted around wrist joint toward palmar surface of forearm. 0,0: no increase in tone; 1,1 slight increase in tone giving a catch when the limb was moved; 2,2 more marked increase in tone but limb easily flexed; 3,3 considerable increase in tone- passive movement difficult; 4,4 limb rigid

Dose of botox injection in the left lateral hamstring

Dose of botox injection in the left medial hamstring

Dose of botox injection in the right lateral hamstring

Dose of botox injection in the right medial hamstring

Frequency of botox injection in the left lateral hamstring

Frequency of botox injection in the left medial hamstring

Frequency of botox injection in the right lateral hamstring

Frequency of botox injection in the right medial hamstring

Ankle dorsiflexion- movement where the toes are brought closer to the shin decreasing the angle between the dorsum of the foot and the leg. Knee extended- leg is straightend. R1- indicates a first catch felt during quick passive stretching

Ankle dorsiflexion- movement where the toes are brought closer to the shin decreasing the angle between the dorsum of the foot and the leg. Knee extended- leg is straightend. R1- indicates a first catch felt during quick passive stretching

Ankle dorsiflexion- movement where the toes are brought closer to the shin decreasing the angle between the dorsum of the foot and the leg. Knee flexed- knee bent bringing the lower leg toward the back of the thigh. R1- indicates a first catch felt during quick passive stretching

Ankle dorsiflexion- movement where the toes are brought closer to the shin decreasing the angle between the dorsum of the foot and the leg. Knee flexed- knee bent bringing the lower leg toward the back of the thigh. R1- indicates a first catch felt during quick passive stretching

Hip abduction- movement of the leg away from the midline of the body. Hips extended- backward movment of the leg. Knee extended- leg is straightend. R1- indicates a first catch felt during quick passive stretching

Hip abduction- movement of the leg away from the midline of the body. Hips extended- backward movment of the leg. Knee extended- leg is straightend.R1- indicates a first catch felt during quick passive stretching

Thomas Test- testing hip flexion contractures, anterior or lateral capsular restrictions or hip flexor tightness. Lack of full hip extension with knee flexion less than 45 degrees indicates iliopsoas tightness. R1- indicates a first catch felt during quick passive stretching

Thomas Test- testing hip flexion contractures, anterior or lateral capsular restrictions or hip flexor tightness. Lack of full hip extension with knee flexion less than 45 degrees indicates iliopsoas tightness. R1- indicates a first catch felt during quick passive stretching

Hip flexion- bring legs and trunk together, movement of leg or knee towards the torso or bend the torso forward at the hip R1- indicates a first catch felt during quick passive stretching

Hip flexion- bring legs and trunk together, movement of leg or knee towards the torso or bend the torso forward at the hip R1- indicates a first catch felt during quick passive stretching

Knee extension- straightening of the leg. Knee Flexion contracture- inability to fully straighten the knee. Normal active range of motion (AROM) of the knee is 0 degrees extention and 140 degrees flexion. R1- indicates a first catch felt during quick passive stretching

Knee extension- straightening of the leg. Knee Flexion contracture- inability to fully straighten the knee. Normal active range of motion (AROM) of the knee is 0 degrees extention and 140 degrees flexion. R1- indicates a first catch felt during quick passive stretching

Knee flexion: bending of the knee so that the angle between the bones of the limb at the joint is decreased. R1- indicates a first catch felt during quick passive stretching

Knee flexion: bending of the knee so that the angle between the bones of the limb at the joint is decreased.R1- indicates a first catch felt during quick passive stretching

Popliteal angle- assessment of the tone of the hamstring muscles, the angle between the thight and the leg is approximately 90 degrees, extention of the leg beyond 90 degrees to 120 degrees would be seen as hypotonia. Bilateral- both legs R1- indicates a first catch felt during quick passive stretching

Popliteal angle- assessment of the tone of the hamstring muscles, the angle between the thight and the leg is approximately 90 degrees, extention of the leg beyond 90 degrees to 120 degrees would be seen as hypotonia. Bilateral- both legs R1- indicates a first catch felt during quick passive stretching

cross-sectional sensory roots cut: curring the original sensory nerve cells out of the root and mplanting the ramining root directly into a deeper strcutre within the spinal cord.
Indication of percentage of cross-sectional cuts conducted

cross-sectional sensory roots cut: curring the original sensory nerve cells out of the root and mplanting the ramining root directly into a deeper strcutre within the spinal cord.
Indication of percentage of cross-sectional cuts conducted

Description of any other type of antibiotics administered post-operatively.

Indication/description of antibiotics utilized pre-operatively

Indication of what preventative steps were taken durig preparation for surgery

Bacitracin Irrigation: antibiotic that prevents infections by stopping the growth of certain bacteria Intrathecal Antibotics (Vanc./Gent./Other): an injection that goes into the cerebral spinal fluid and administers medicineAntibiotic Sutures: to protect against surgical site infectionsAntibiotic Powder in Wounds: intrawound local anesthetic to prevent infection

Indication of whether or not this patient has experienced a traumatic brain injury