Members of the CPRN leadership team joined Dr. Rich Stevenson, Principal Investigator for the Enhancing Surgical Decision Making study, in a teleconference with two program directors at Patient Centered Research Outcomes Institute (PCORI) to discuss how to improve the opportunity for funding. CPRN had submitted an application in July, 2015 and learned on January 29, 2016 that the application was not funded. While the application scored well, PCORI only funded 5 of 34 applications. We met with PCORI staff to better understand the feedback from reviewers and determine our path forward. The dialogue was very productive and the staff was encouraging about the importance of surgical decision making in cerebral palsy.
The next PCORI funding cycle that will open for this study requires a letter of intent to be submitted in May, 2016. The study team plans to revise the study incorporating the feedback from PCORI staff and reviewers and re-submitting. We will also consider submitting a variant of the study to NIH. We remain committed to the importance of studying surgical interventions for cerebral palsy and confident that there will be a public funder, either PCORI or NIH, for the study.