Charter Members are the sites and investigators piloting the CPRN cerebral palsy registry and defining the initial Standard Operating Procedures for the network. All charter members are part of the CPRN Investigator Committee. The names in bold are also part of the CPRN Executive Committee. Green markers indicate sites where patients are actively being included in the registry. Sites with yellow markers are next to come on line enrolling patients. Sites with red markers are preparing to capture patient data in the registry. Sites with blue markers are candidate sites that have initiated the work to become CPRN centers and implement the CPRN Clinical Registry.
Participating Centers
| Hospital | University | Principal Investigator |
|---|---|---|
| AI Dupont/Nemours | Wade Sharder, M.D., Orthopedic Surgery Alternate PI: Kenneth Rogers, Ph.D. |
|
| Benioff Children’s Hospital Oakland | UCSF | Ravinder Brar, M.D., M.P.H. Orthopedic Surgery |
| Boston Children’s | Harvard University | Benjamin Shore, M.D., M.P.H., Orthopedic Surgery Alternate PI: Brian Snyder, M.D., Ph.D., Orthopedic Surgery |
| Children’s of Alabama | University of Alabama | Brandon Rocque, M.D., Neurosurgery |
| Cincinnati Children’s | University of Cincinnati | Jilda Vargus-Adams, M.D., M.P.H., Physical Medicine and Rehabilitation
Amy Bailes, PhD, Physical Therapy; |
| Children’s Hospital Colorado | University of Colorado | Dennis Matthews, M.D., Physical Medicine and Rehabilitation Alternate PI: Jason Rhodes, M.D., Orthopedic Surgery |
| Gillette Children’s Specialty Hospital | Tom Novacheck, M.D., Orthopedic Surgery Alternate PI: Angela Sinner, D.O. |
|
| Nationwide Children’s Hospital | Ohio State University | Jeffrey Leonard, M.D., Neurosurgery
Garey Noritz, M.D., Developmental Pediatrics |
| Primary Children’s Hospital | University of Utah | Robert Bollo, M.D., Neurosurgery Alternate PI: Allison Oki, M.D., Physical Medicine and Rehabilitation |
| Phoenix Children’s Hospital | University of Arizona | Michael Kruer, M.D., Neurology Alternate PI: Mohan Belthur, M.D., Orthopedic Surgery |
| Rady Children’s Hospital | UCSD | Pritha Dalal, M.D., Physical Medicine and Rehabilitation Alternate PI: Andrew Skalsky, M.D., Physical Medicine and Rehabilitation |
| Riley Children’s Hospital | Indiana University | Jeffrey Raskin, M.D., Neurosurgeon Clinical Research Coordinator: Connie Garland |
| Scottish Rite Children’s Hospital | Mauricio Delgado, M.D., Pediatric Neurology Alternate PI: Nancy Clegg, R.N., Ph.D., Neurology |
|
| Seattle Children’s Hospital | University of Washington | Kristie Bjornson, Ph.D., Physical Therapy |
| SickKids | University of Toronto | Unni Narayanan, M.D., Orthopedic Surgery |
| Texas Children’s Hospital | Baylor College of Medicine | Aloysia Schwabe, M.D., Physical Medicine and Rehabilitation |
| UCLA Health | UCLA | Rachel Thompson, M.D., Orthopedic Surgery Alternate PI: Marcia Greenberg, M.S., Physical Therapy |
| University of Florida | Christine Thorogood, M.D., Physical Medicine and Rehabilitation Alternate PI: Louise Spierre, M.D., Physical Medicine and Rehabilitation |
|
| University of Hartford | Mary Gannotti, Ph.D., Physical Therapy | |
| University of Michigan Medical Center | University of Michigan | Ed Hurvitz, M.D., Physical Medicine and Rehabilitation Alternate PI: Clifford Craig, M.D., Orthopedic Surgery |
| University of North Carolina — Chapel Hill | University of North Carolina — Chapel Hill | Deborah Thorpe, Ph.D., Physical Therapy Alternate PI: Josh Alexander, M.D., Physical Medicine and Rehabilitation |
| University of Texas Health Science Center — Houston | University of Texas | Manish Shah, M.D., Neurosurgery |
| University of Virginia | University of Virginia | Christopher Lunsford, M.D., Physical Medicine and Rehabilitation Alternate PI: Mark Romness, M.D., Orthopedic Surgery |
| Yale University Medical Center | Yale University | David Frumberg, M.D., Orthopedic Surgery |