Edward A. Hurvitz MD of Michigan Medicine, University of Michigan and Cerebral Palsy Research Network (CPRN) Executive Committee, was awarded the Foundation for Physical Medicine & Rehabilitation Gabriella Molnar grant for a project entitled “Feasibility of Adding Grip Strength Measures to Body Composition Assessments in Individuals with Cerebral Palsy.” The aim of the project is to test the feasibility of adding measures such as waist-hip circumference, skinfold measures, and grip strength to a regular clinic appointment for individuals with cerebral palsy (CP) from age 8 through adulthood, and then potentially as data points in the CPRN CP Registry. The Michigan Adults with Pediatric Onset Disabilities research group has published extensively on chronic disease risk in adults with CP. Body composition and grip strength are well documented indicators for risk of morbidity and mortality in typical developing populations, and obesity has been associated with risk of multi-morbidity in adults with CP, including young adults between ages 18-40. The study will also include a history of chronic disease with an exploratory aim to correlate body composition and hand grip findings to history.
CPRN congratulates Dr. Hurvitz and his colleagues for their success in funding this research which was originally approved as a concept for CPRN in April 2019. This study addresses top priorities from Research CP, including the study of the effects of aging with cerebral palsy as well as laying the groundwork to do studies of exercise strategies to promote better health outcomes. Co-investigators on the study include Drs. Mark Peterson, Dan Whitney, Heidi Haapala, Mary Schmidt, Angeline Bowman and Jessica Pruente. The funding amount is $10,000 dollars, to be used for measurement equipment and research assistance. The start date is December 1, and the study is planned for 18 months.
The Cerebral Palsy Research Network (CPRN) is proud to participate in this year’s World CP Day. We at CPRN, with our partner CP NOW, are enabling members of the cerebral palsy (CP) community to “Make Your Mark” through participation in CP research. A little less than a year ago we launched MyCP.org and invited the extended CP community to make a difference by contributing to research – setting research direction, contributing your experience and interacting with clinician researchers committed to improving outcomes for people with CP. MyCP is now over 1,000 people strong providing news, discussions and opportunities to participate in research from your phone or computer. This past March we launched the MyCP webinar series so members of the community could learn about CPRN research initiatives directly from CPRN researchers. Our research reaches from diagnosis into retirement so our community of people with CP, parents, advocates, clinicians and researchers are working to improve quality of life throughout the lifespan. Join MyCP and tell us how you have made your mark!
The Cerebral Palsy Research Network (CPRN) announced that its next webinar in it MyCP Webinar series would be on the role of speech and language as predictors of participation for children with cerebral palsy (CP) on Tuesday, September 29, at 8 pm ET. Kristen Allison, PhD, CCC-SLP, an assistant professor at Northeastern University, will discuss her research on this topic. Dr. Allison’s research was funded by the Research CP award sponsored by CP NOW in the fall of 2019. The presentation will be approximately 20 minutes and followed by an open Q&A with Dr. Allison. The study, which includes children of all abilities with CP between the ages of four and 17 years-old, seeks to understand how language skills impact a child’s ability to participate in various activities. Participation is a critical factor in quality of life and is an increasingly important patient reported outcome measure for many research efforts. Dr. Allison’s study was made available to participants in the CPRN Community Registry on MyCP in the spring of 2020.
Interested participants need to register for the webinar to be sent instructions for joining. Webinars will be recorded and posted for later viewing. The MyCP Webinar series includes one presentation per month on different aspects of CPRN’s research studies. Please join us!