Cerebral Palsy Research Network Blog

Archive for Patient Engagement – Page 3

Sign Up: A Care Pathway for Dystonia in CP

The Cerebral Palsy Research Network (CPRN) and CP NOW invite you to join us on tonight, Wednesday, October 30, 2019 at 8:00 pm ET for a webinar with Dr. Darcy Fehlings to learn about the American Academy for Cerebral Palsy and Developmental Medicine’s (AACPDM) ‘Care Pathway’ for dystonia in cerebral palsy (CP).

The dystonia care pathway summarizes existing tools for the diagnosis of dystonia in CP and the latest evidence about the care and treatment for this condition. Dr. Fehlings led the team who developed this information. Dr. Fehlings also co-developed a clinical tool to identify dystonia which is called the Hypertonia Assessment Tool (HAT). Dr. Fehlings’ research has demonstrated that dystonia is far more common in CP than previously thought. 

This webinar is the second in the three-part series for Research CP Dystonia Edition. It will run for approximately 45 minutes and be followed by 30 minutes of questions and answers. Our target audience is community members experiencing dystonia in CP and clinicians and therapists that treat dystonia. Participants who listen to all three webinars will be invited to participate in developing a formal research agenda for dystonia in CP.

Community members and providers interested in participating should read the details of Research CP Dystonia Edition. Or just sign up for the webinar!