Entries by Paul

Ways To Support National Cerebral Palsy Awareness Month!

As March kicks off Cerebral Palsy (CP) Awareness month and culminates in National CP Awareness Day on March 25, it gives us a great opportunity to strengthen our community and inform the general public about CP.  Here are some ways you can support our work and the CP community:  1) Wear Green! Our community color is green so let’s make our presence known wherever we can! If you missed…

Cerebral Palsy Research Network Merges with CP NOW

We are excited to announce the Cerebral Palsy Research Network (CPRN) has merged with CP NOW, a nonprofit organization for parents and caregivers based in Greenville, South Carolina.  Merging CPRN and CP NOW is a natural extension of the longstanding strategic partnership between the two organizations. Previously, CP NOW President and Founder Michele Shusterman has…

The Silver Linings of 2020 for Cerebral Palsy Research

Dear friends, Last year was a difficult year for everyone, not least the healthcare workers that power the advances we are seeking for people with cerebral palsy.   The adjustments to medical practices due to COVID-19 left clinical research efforts scrambling to adjust to the “new normal”. As lockdowns occurred, and in-person clinics and elective surgeries were limited,…

Exercise and physical activity in spastic diplegia – older children, adolescents, and adults – part 4

[This post is part of our Knowledge Translation/Education Tuesday series. Guest author Lily Collison, author of Spastic DiplegiaBilateral Cerebral Palsy, continues the series. You can ask questions of the author on the MyCP Forum]. In the last post I included links to the guides Fit for Life, Fit for Sport, and exercise and physical activity tips for the…

Webinar: Body Composition and Strength in Cerebral Palsy

The Cerebral Palsy Research Network (CPRN) announced that its next webinar in its MyCP webinar series would be about importance of body composition and strength in cerebral palsy (CP) on Monday, December 7, at 8 pm ET. Dr. Edward Hurvitz, Chairman of the Department of Physical Medicine and Rehabilitation at the University of Michigan will…

Exercise and physical activity in spastic diplegia – younger children — part 3

[This post is part of our Knowledge Translation/Education Tuesday series. Guest author Lily Collison, author of Spastic Diplegia–Bilateral Cerebral Palsy, continues the series. You can ask questions of the author on the MyCP Forum]. In the last post I wrote about Verschuren and colleagues (2016) recommendations for exercise and physical activity for people with cerebral…

Exercise and physical activity in spastic diplegia – part 2

[This post is part of our Knowledge Translation/Education Tuesday series. Guest author Lily Collison, author of Spastic Diplegia–Bilateral Cerebral Palsy, continues the series. You can ask questions of the author on the MyCP Forum]. Thankfully, with our lockdown here in Ireland COVID case numbers are decreasing. The 5km restriction here means that both my photo…

Exercise and physical activity in spastic diplegia – part 1

[This post is part of our Knowledge Translation/Education Tuesday series. Guest author Lily Collison, author of Spastic Diplegia–Bilateral Cerebral Palsy, continues the series. You can ask questions of the author on the MyCP Forum]. The natural beauty surrounding us, helps during another lockdown here in Ireland. COVID case numbers have recently increased thus further restrictions…