Entries by Paul

Annual Conference Sparks Innovation and New Research Ideas

Forty-five clinicians from 28 academic medical centers came together on Zoom last month for the Cerebral Palsy Research Network’s fourth annual investigator conference. The two-day online gathering featured keynote speaker Marc Randolph, the co-founder and first CEO of Netflix, who shared pearls of wisdom on decision-making and growth to our diverse audience of research leaders. Participants,…

CPRN Investigators To Detail Important Findings

Three researchers from the Cerebral Palsy (CP) Research Network will present scientific findings at this year’s American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) annual meeting.   Kristen Allison, Ph.D., a speech pathologist and researcher at Northeastern University, will present “Speech and Language Predictors of Participation in Children with CP,” research made possible through the CP…

Discovery and Improved Health from your Lived Experience

Next Tuesday, April 20, at 8 pm ET, the Cerebral Palsy Research Network will be hosting a MyCP webinar about how innovative technology is advancing CP research. Dr. Jacob Kean, Associate Professor in Health System Innovation and Research at the University of Utah, will be presenting how we can transform healthcare for CP by harnessing information from your lived experiences.   Dr. Kean will explain how our partnership with Datavant is opening doors to breakthroughs from community participation in MyCP, receiving care at a CP Research Network Center, or by participating in our research.   Datavant allows us to connect many…

Here’s a sneak peek at our new website!

Thanks to our merger with CP NOW and new research studies already off the ground, it’s been an exciting year so far for the CP Research Network. So, what’s next? Our new website!     Since our January merger, our team has been busy integrating four websites into one to create a new online home – cprn.org…

CP Stories: Brittany Lopez

“Ethan knows he’s different and he’s really happy and content.” Toddler Ethan Lopez was diagnosed with spastic quadriplegia cerebral palsy (CP) and dystonia at the age of two. Today, his mother Brittany, 31, shares her joy at seeing her son take everything in his stride… Just like many parents with a young child, Brittany Lopez,…

Double Down on Cerebral Palsy Awareness

Today is National Cerebral Palsy Awareness Day!  We have all had a busy month trying to educate our friends, family and the public about what they can do to increase awareness and improve wellness for people with CP.  We have tried to make the most of the month here at the CP Research Network including:…

Adaptive Fitness and Cerebral Palsy

Exercise has long been hailed as good for the body and mind, regardless of people’s abilities or levels of fitness. But for people with CP, who are at high risk of chronic diseases, physical therapy and exercise are vital components to staying strong and healthy…  Anyone can improve their health with exercise and movement. Still,…

CP Stories: The “Can Do” John Borland

“You can’t expect a group of people to respect you more than you respect yourself.” — John Borland Retired health inspector John Borland, 68, has fought stigma and the feeling of being underestimated throughout his life with cerebral palsy. Today he shares how a relentless ‘can-do’ approach to living has helped him meet his full potential. …

CP Research Network supports advocacy efforts to advance research for neurological conditions

The Cerebral Palsy Research Network is proud to sponsor this month’s Congressional Neuroscience Caucus (CNC) briefing focused on improving neurodevelopmental disorders.  The briefing entitled “On Neurodevelopmental Disorders: The Challenges and the Opportunities” will occur on Wednesday, March 17, and has been organized by the American Brain Coalition.  CP Research Network is an event sponsor alongside Autism Speaks, the American Academy of Neurology,  and the Society for Neuroscience.  The bipartisan Congressional Neuroscience Caucus promotes…