Entries by Paul

Adaptive Fitness and Cerebral Palsy

Exercise has long been hailed as good for the body and mind, regardless of people’s abilities or levels of fitness. But for people with CP, who are at high risk of chronic diseases, physical therapy and exercise are vital components to staying strong and healthy…  Anyone can improve their health with exercise and movement. Still,…

CP Stories: The “Can Do” John Borland

“You can’t expect a group of people to respect you more than you respect yourself.” — John Borland Retired health inspector John Borland, 68, has fought stigma and the feeling of being underestimated throughout his life with cerebral palsy. Today he shares how a relentless ‘can-do’ approach to living has helped him meet his full potential. …

CP Research Network supports advocacy efforts to advance research for neurological conditions

The Cerebral Palsy Research Network is proud to sponsor this month’s Congressional Neuroscience Caucus (CNC) briefing focused on improving neurodevelopmental disorders.  The briefing entitled “On Neurodevelopmental Disorders: The Challenges and the Opportunities” will occur on Wednesday, March 17, and has been organized by the American Brain Coalition.  CP Research Network is an event sponsor alongside Autism Speaks, the American Academy of Neurology,  and the Society for Neuroscience.  The bipartisan Congressional Neuroscience Caucus promotes…

CP Stories: Why Genetics Matter

“We believe this study will move the needle and help patients and their families.” – Dr. Michael Kruer As he embarks on a the Cerebral Palsy Research Network’s first publicly funded study into genetic causes of cerebral palsy, Dr. Michael Kruer, Director of the Pediatric Movement Disorders Program at Phoenix Hospital, hopes the landmark research will help transform patient care.  Working as a dedicated pediatric neurologist, Dr. Michael Kruer is passionate about…

Cerebral Palsy Awareness: Spread the Word!

The Cerebral Palsy Research Network launched a new CP Awareness campaign today in honor of CP Awareness Month.  We have created a set of Facebook (FB) Cover Photo banners with key facts about CP for you to install on your personal FB page. Each day we will be sharing more on our social media pages,…

Data Linking Partnership Accelerates Discovery in Cerebral Palsy Research

Yesterday the Cerebral Palsy Research Network announced a partnership with Datavant Corporation of San Francisco, CA, to enable linking of data sets to accelerate new findings in cerebral palsy (CP) research.  The CP Research Network will initially use data linking technology to facilitate the CP Genetics study we are launching next month.  Data linking allows researchers to combine types of information such as genetics and patient descriptions, from different sources to…

Want to try a home wellbeing program?

We Have Ten Free Spots Available For A New Wellbeing Program!  Many people with cerebral palsy benefit from a multifaceted approach to managing their condition, combining regular therapies, exercise, and a healthy diet and lifestyle. As we encourage our community to strive for the best possible outcomes we are delighted to partner with the National…

Tune in to our next webinar — Genetic causes of cerebral palsy

We will kick off our ground-breaking “Genetic Causes of Cerebral Palsy” study with an informative MyCP webinar next Wednesday, March 10, at 8 pm EST.  Dr. Michael Kruer, a neurogeneticist and pediatric movement disorders neurologist at Phoenix Children’s Hospital, will lead the study after receiving CPRN’s first publicly funded (NIH) grant to study the genetic causes of CP.  Clinicians…

Ways To Support National Cerebral Palsy Awareness Month!

As March kicks off Cerebral Palsy (CP) Awareness month and culminates in National CP Awareness Day on March 25, it gives us a great opportunity to strengthen our community and inform the general public about CP.  Here are some ways you can support our work and the CP community:  1) Wear Green! Our community color is green so let’s make our presence known wherever we can! If you missed…

Don’t miss our 2021 MyCP Webinar Series!

Last year, more than 1,000 people logged on for our MyCP webinar series as we came together as a community to discuss cerebral palsy (CP) research. We are thrilled to announce our webinar series will return in 2021 with our first installment, Research CP: Dystonia Edition Results, scheduled for Tuesday, February 9, at 8 p.m….