Entries by Paul

CPRN Finalizes Application for Largest Cerebral Palsy Study

Principal Investigators Rich Stevenson, M.D., of the University of Virginia (UVA) and Paul Gross of the Cerebral Palsy Research Network (CPRN) and their study team finalized the details for what will be the largest cerebral palsy study ever conducted in the U.S. The study team and site investigators have been hard at work to complete…

Cerebral Palsy Nonprofits and Academies Support CPRN PCORI Application

As the Cerebral Palsy Research Network (CPRN) and Richard Stevenson, MD, of the University of Virginia finalize their application to the Patient-Centered Outcomes Research Institute for a large scale cerebral palsy trial, we have received tremendous support for the study from both the cerebral palsy nonprofit organizations and the provider membership organizations. The membership organizations…

Site Survey Speaks Volumes About CPRN Study Capacity

As the Cerebral Palsy Research Network (CPRN) prepares its application for the Patient-Centered Outcomes Research Institute (PCORI), we sought very detailed information from our partner Site Principal Investigators (Site PIs) about the children they see and treat in their hospitals. The proposed PCORI application is a study of lower extremity interventions for children with bilateral…

CPRN Invites Eight New Sites to Partner in PCORI Application

Twenty Three Sites Invited To Participate in Groundbreaking Study The Cerebral Palsy Research Network (CPRN) has invited eight new study sites to partner with 15 of the existing CPRN network sites for the “Comparative Effectiveness of Surgical and Non-Surgical Interventions for Ambulatory Children with Bilateral Spastic (Diplegic) Cerebral Palsy using Patient Centered Outcomes” study application….

CPRN Investigators Invited to Apply for PCORI Funding

The CPRN investigators have been invited to submit a full Patient-Centered Outcomes Research Institute (PCORI) application for the Large Pragmatic Studies to Evaluate Patient-Centered Outcomes – Spring 2016 Cycle which closes on August 9, 2016. Richard Stevenson, M.D., of the University of Virginia, is the lead Principle Investigator in the study entitled “Comparative Effectiveness of…

CPRN Registry Data Collection Begins!

Major milestone marks start of a national cerebral palsy registry! The CPRN Registry Protocol was approved by the Nationwide Children’s Hospital’s (NCH) Institutional Review Board (IRB) on Monday, June 6, 2016 with a retroactive start date of April 22, 2016. The CPRN CP registry protocol, a formal description of the plans, purpose and data to…

CPRN Adds Adult Patient Advisory Committee

Critical Step In Creating Patient-Centered Research The Cerebral Palsy Research Network (CPRN) invited a group of 11 adults with CP and adult caregivers to form the adult study panel of its Patient Advisory Committee (PAC). The PAC will be involved in the work of CPRN at several levels including advising on the strategic direction of…

CPRN Community Engagement Director is AACPDM Award Recipient

CPRN is proud to announce that Michele Shusterman, Community Engagement Director for the CPRN Leadership Team, is receiving the Making a Difference Award at the 70th Annual American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) meeting this year in September, 2016. This award is periodically given to individuals identified as making a substantial impact…

Complete CPRN Registry System Demonstrated

CPRN is excited to announce that a major milestone has been reached with the help of both Texas Scottish Rite Hospital and Nationwide Children’s Hospital regarding EMR rollout. Texas Scottish Rite Hospital for Children’s (TSRH) Chief Medical Information Officer, Lawson Copley, M.D. demonstrated a complete implementation of the CPRN Registry to the CPRN Investigator Committee…