Entries by Paul

CPRN Registry Data Collection Begins!

Major milestone marks start of a national cerebral palsy registry! The CPRN Registry Protocol was approved by the Nationwide Children’s Hospital’s (NCH) Institutional Review Board (IRB) on Monday, June 6, 2016 with a retroactive start date of April 22, 2016. The CPRN CP registry protocol, a formal description of the plans, purpose and data to…

CPRN Adds Adult Patient Advisory Committee

Critical Step In Creating Patient-Centered Research The Cerebral Palsy Research Network (CPRN) invited a group of 11 adults with CP and adult caregivers to form the adult study panel of its Patient Advisory Committee (PAC). The PAC will be involved in the work of CPRN at several levels including advising on the strategic direction of…

CPRN Community Engagement Director is AACPDM Award Recipient

CPRN is proud to announce that Michele Shusterman, Community Engagement Director for the CPRN Leadership Team, is receiving the Making a Difference Award at the 70th Annual American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) meeting this year in September, 2016. This award is periodically given to individuals identified as making a substantial impact…

Complete CPRN Registry System Demonstrated

CPRN is excited to announce that a major milestone has been reached with the help of both Texas Scottish Rite Hospital and Nationwide Children’s Hospital regarding EMR rollout. Texas Scottish Rite Hospital for Children’s (TSRH) Chief Medical Information Officer, Lawson Copley, M.D. demonstrated a complete implementation of the CPRN Registry to the CPRN Investigator Committee…

Dr. Ed Hurvitz Joins CPRN Leadership Team

The Cerebral Palsy Research Network (CPRN) welcomes Edward Hurvitz, M.D. to the CPRN leadership team and Executive Committee. Dr. Hurvitz is Professor and Chair, and James W. Rae Collegiate Professor, Department of Physical Medicine and Rehabilitation (PM&R) at the University of Michigan Medical School. He has been involved in the diagnosis and management of pediatric…

CPRN Registry Forms Enter Production at Nationwide Children’s Hospital

Cerebral Palsy Registry Rollout Begins The Cerebral Palsy Research Network (CPRN) Registry forms went into production at the lead registry site — Nationwide Children’s Hospital (NCH) – this week. NCH’s Cerebral Palsy Program Director and CPRN executive committee member Dr. Garey Noritz used the forms when seeing patients in clinic on Monday, April 25, 2016….

CPRN Registry Protocol Submitted at Nationwide Children’s Hospital

The CPRN Registry Protocol, a formal description of the plans, purpose and data to be collected, safety and monitoring for the CPRN Registry research project, was submitted to the Nationwide Children’s Hospital (NCH) Institutional Review Board (IRB) today. The IRB’s role is to assure the protection of human subjects in research such that it is…

Two CPRN Presentations Accepted for the AACPDM Annual Meeting

The Cerebral Palsy Research Network (CPRN) received confirmation that the two abstracts that CPRN leaders submitted have been accepted to be presented at the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) annual meeting September 2016. Both abstracts were accepted as Breakfast Seminars and confirm the growing interest of the AACPDM in the work…

CPRN Registry EMR Forms Milestone Reached

Nationwide Children’s Hospital (NCH), along with Texas Scottish Rite Hospital, are leading the charge to build the CPRN Registry into the Electronic Medical Record (EMR) systems for CPRN. A major milestone for the CPRN EMR forms development was reached today. The forms for non-surgical doctors who treat people with cerebral palsy were released to the…