Entries by Paul

Adult cerebral palsy outcomes to be added to CPRN registry

The Cerebral Palsy Research Network will expand its registry to include the study of adult cerebral palsy. Research about long-term outcomes for adults with CP was a key focus area identified in the 2014 NIH Workshop entitled “State-Of-The-Science and Treatment Decisions in Cerebral Palsy.” Workshop attendees Mary Gannotti and Deborah Thorpe volunteered to lead the…

Cerebral Palsy Therapy Registry Completed

The physical and occupational therapy subspecialty group finished their initial data element definition on Tuesday, July 14, 2015.  The group, led by CPRN network leader Dr. Amy Bailes, a physical therapist at Cincinnati Children’s Hospital, consisted of Dr. Bailes and eight therapists who treat CP in North America including: Dr. Kristie Bjornson, Seattle Children’s Hospital…

Cerebral Palsy Orthopedics Registry Completed

The orthopedic surgery subspecialty group finished their initial data element definition on Wednesday, July 8, 2015. The group, led by CPRN network leader Dr. Unni Narayanan, an orthopedic surgeon at the Hospital for Sick Children, consisted of Dr. Narayanan and ten surgeons who treat CP in North America including: Dr. Benjamin Shore, Boston Children’s Hospital…

Cerebral Palsy Diagnosis Data Elements Completed

The non-surgical clinicians subspecialty group finished their initial data element definition on Thursday, July 2, 2015. The group, led by CPRN network leader Dr. Garey Noritz, Director of the Comprehensive Cerebral Palsy Program at Nationwide Children’s Hospital, consisted of Dr. Noritz and twelve clinicians who treat CP around the nation including: Dr. Jan Brunstrom-Hernandez, 1…

CPRN sites selected for PCORI application

The study team working on the PCORI application for comparative effectiveness study of surgical interventions selected 18 sites to participate in the grant application. Nearly all of the sites were selected from current participants in CPRN. Below are the site principle investigators (PIs) and the institutions that have been selected. All sites are actively working…

Neurosurgery Registry Data Definition Complete

The neurosurgery subspecialty group finished their initial data element definition yesterday. The group, led by CPRN network leader Dr. Jerry Oakes, Surgeon-in-Chief at Children’s of Alabama, consisted of ten neurosurgeons including: Dr. Philipp Aldana, Wolfson Children’s Hospital Dr. Richard Anderson, Columbia University Dr. Robert Bollo, Primary Children’s Hospital Dr. Jeffrey Leonard, Nationwide Children’s Hospital Dr….

Investigators to submit PCORI application

The CP Research Network investigators have been invited to submit a full PCORI application for the Large Pragmatic Studies to Evaluate Patient-Centered Outcomes – Spring 2015 Cycle which closes on July 31, 2015. Dr. Richard Stevenson of the University of Virginia is the lead Principle Investigator in the study entitled “Comparative Effectiveness of Major Surgical…

Welcome to the CP Research Network

The Cerebral Palsy Research Network (CPRN) is a group doctors, therapists and patient advocates collaborating to improve treatments and outcomes for people with CP.  The network combines the expertise of doctors and therapists committed to treating CP with clinical epidemiologists and rigorous data collection practices to plan and execute high quality clinical trials and quality…