The Cerebral Palsy Research Network (CPRN) welcomed Akron’s Children’s Hospital to the network and Micah Baird, MD, a pediatric physical medicine and rehabilitation physician, as its principal investigator. Akron Children’s Hospital is the 26th site to join the network and expands the network’s footprint into northeastern Ohio. The ongoing care for children with cerebral palsy (CP) occurs primarily in the NeuroDevelopmental Science Center at Akron Children’s Hospital and includes clinicians from pediatric rehabilitation medicine as well as developmental pediatrics, neurology, neurosurgery, psychology, and neuropsychology. The hospital system has cared for 1,961 people with CP in the last year so their participation in the network will substantially increase the patient data included in the CPRN CP registry.
Akron Children’s Hospital has been very agile in getting the CPRN CP Registry up and running in its practice. Patient data from clinical visits for CP will be de-identified and transferred to the CPRN Data Coordinating Center at the University of Utah. This agility allows Akron Children’s to participate in the generation of new evidence and quality initiatives to improve outcomes for people with CP and strengthens the CPRN CP Registry with a larger population and treatment history.