Cerebral Palsy Research Network Blog

Archive for June 2019

CPRN celebrates its 25th Center with addition of Joe DiMaggio Children’s Hospital

Joe DiMaggio Children’s Hospital of Hollywood, Florida has joined the Cerebral Palsy Research Network (CPRN).  Heather Spader, MD, a pediatric neurosurgeon and Monica Arroyo, MD, a pediatric neurologist, will be the site principal investigators (PIs) representing Joe DiMaggio Children’s Hospital in the network.  Adding this hospital gives representation of Southern Florida in the network and adds to the diversity of patient population in our cerebral palsy registry.

Dr. Spader’s research and publication of “Risk factors for baclofen pump infection in children: a multivariate analysis” in the Journal of Neurosurgery in 2016 was developed in conjunction with the PI of our quality improvement initiative, Dr. Robert Bollo, to reduce intrathecal baclofen pump infections.  Dr. Spader is the sixth neurosurgeon to join CPRN as a principal investigator and will contribute to the CPRN clinical registry’s capture of neurosurgical interventions for children with cerebral palsy.  Dr. Arroyo joins a growing segment of pediatric neurologists to join the network as CPRN expands its research into epilepsy, dystonia and neonatal brain development issues in CP.

CPRN welcomes Doctors Spader and Arroyo and Joe DiMaggio Children’s Hospital as the 25th center to engage in our collaborative research efforts.  The research interests of these PIs, their patient population and the location will be great assets to the network’s diversity and efficacy to better serve all of those who live with cerebral palsy.

CP NOW Sponsors New RFA for CPRN

CP NOW, a non-profit focused on cerebral palsy education and research, is sponsoring a $30,000 Request for Applications (RFA) in conjunction with the Cerebral Palsy Research Network (CPRN). The RFA is open to investigators that are either members of CPRN or outside of the network.  CP NOW and CPRN seek to fund research that will advance key questions in the Research CP patient-centered research agenda using CPRN’s resources, e.g., sites, investigators, and CP registries.  Interested investigators can download the complete RFA here.

“We are very excited to partner with CP NOW in meeting their mission of optimizing the lifelong health, wellness and inclusion of people with cerebral palsy and their families” through the funding of patient-centered research,” said Paul Gross, Chairman and Founder of CPRN. “This RFA enables the international community of CP researchers to potentially leverage the power of CPRN and our registries to conduct research to address key questions prioritized by the community through Research CP.”

The CPRN RFA is modeled after the grant application used by the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM).  The timing of the CPRN RFA, with applications due in mid-September, allows investigators that applied to AACPDM’s research funding opportunity to easily re-use their applications to apply for CPRN’s funding opportunity.  All of the relevant dates and details can be found in the RFA but the important dates to note include:

  1. Letter of Intent is due on July 1, 2019
  2. Invited applications are due on September 15, 2019.
  3. Funding decisions will be announced by November 1, 2019.

The answers to many investigator questions can be found on our CPRN and CP NOW RFA Frequently Asked Questions page.  Additional questions may be directed to info@cprn.org. This RFA is a significant milestone for CPRN because it provides the necessary funding to leverage our CP Registries for large public grant applications to answer key questions developed by the community.

“CP NOW is excited to present our second funding opportunity in partnership with CPRN. This collaboration builds upon the work both organizations began during our Research CP program. It reinforces our commitment to ensuring that we are supporting research that matters most to people with CP,” said Michele Shusterman, CP NOW President and Founder. “CPRN’s capacity to facilitate efficiency in finding answers to pressing community questions is aligned with CP NOW’s desire to integrate new information into the care and treatment of people with CP as quickly as possible. “