Cerebral Palsy Research Network Blog

Archive for December 2018

Yale University Joins CPRN

David Frumberg, MD, Orthopedic Surgeon, Yale University

David Frumberg, MD, Orthopedic Surgeon, Yale University

The Cerebral Palsy Research Network (CPRN) welcomes David Frumberg, M.D., an orthopedic surgeon at Yale University to join the network. Dr. Frumberg treats individuals of all ages, so his participation expands the representation of adults with cerebral palsy (CP) in the network. The NIH strategic plan for CP prioritized the study of adults with CP and several of the top research ideas established by Research CP focused on the health and outcomes of adults.

“CPRN is the most important research initiative going on today in the world of CP,” explains Dr. Frumberg. “CPRN will provide better evidence to guide our treatment of adults with CP, and over time this will help empower a bigger workforce to keep adults healthy for the entire lifespan.”

Yale-New Haven Hospital brings CPRN’s number of committed sites to 23 institutions. Dr. Frumberg’s practice with adults with CP expands CPRN’s geographic coverage of the adult population to the northeast. Other sites that treat adults in CPRN include Gillette, Nationwide Children’s Hospital, UCLA, UCD, University of Michigan, University of North Carolina – Chapel Hill.

A.I. duPont Hosts CPRN for CP Grand Rounds

CPRN Chair Paul Gross speaks at the AI duPont CP Community Event

CPRN Chair Paul Gross speaks at the AI duPont CP Community Event

Cerebral Palsy Research Network (CPRN) Chairman and Founder, Paul Gross, kicked off the inaugural CP Grand Rounds on November 1, 2018 at Nemours/Alfred I. duPont Hospital in Wilmington, Delaware. Gross was invited by M. Wade Shrader, M.D. newly appointed Chief of the Division of Cerebral Palsy and the Freeman Miller Endowed Chair of CP, who is expanding the CP program at A.I. duPont. Gross shared the steps that led to the creation of CPRN and his vision how it would change care and outcomes in cerebral palsy. His grand rounds presentation was followed by discussions about the hospital’s efforts to contribute to CPRN and expand the evidence base for cerebral palsy treatments.

“All of us at duPont are extremely proud to be a part of the CPRN Community. It was a great honor to have Paul Gross here to kick off our new CP Grand Rounds, and we were excited to have him here, visiting with all the clinicians and researchers to brainstorm about research opportunities to improve the lives of our patients and their families,” explained Dr. Shrader.

Gross also spoke at the annual A.I. duPont CP Community event on Saturday, November 3, 2019 which was attended by 80 individuals and families who have been treated for CP at the hospital. He shared his experience as a parent advocate for research for his 13-year-old son. The annual event features speakers, breakout sessions and a vendor fair for families of children with CP and provides a tremendous opportunity for community members to engage with clinicians and therapists without the time pressures of clinic or other hospital engagements.