Pediatric Patient Reported Outcomes Study Group

The Pediatric Patient Reported Outcomes (PRO) study group is leading CPRN’s efforts in pediatric PRO surveys through our soon to be launched patient-powered registry. The group works with the pediatric community panel to get feedback on priorities for PRO studies and leverages patient advocates Paul Gross and Michele Shusterman as active participants in the study team. Leader: Paul Gross (interim) Study Group Participants include: Amy Bailes, P.T., Ph.D., Cincinnati Children’s Hospital Mary Gannotti, P.T., Ph.D., University of Hartford Susan Horn, Ph.D., University of Utah Jacob Kean, Ph.D., University of Utah Aga Lewelt, M.D., University of Florida – Jacksonville Unni Narayanan, M.D., M.Sc., SickKids Brandon Roque, M.D., Children’s of Alabama Benjamin Shore, M.D., M.P.H., Boston Children’s Hospital Michele Shusterman, CP Now Foundation Jilda Vargus-Adams, M.D., M.P.H., Cincinnati Children’s Hospital