Setting a Patient-Centered Research Agenda for Cerebral PalsyResearch CP is an educational series and agenda setting process in 2017 that will culminate in a one-and-a-half day workshop in Chicago that will bring together people from the CP community with clinician researchers to set a prioritized research agenda for cerebral palsy. This project has been partially funded by a Eugene Washington PCORI Engagement award from the Patient-Centered Outcomes Research Institute (PCORI) to help us develop a community of people committed to the principles of patient-centered research for CP. While there are several ways to engage in the Research CP educational series, attending the workshop represents the deepest level of commitment to the end result of a research agenda for CP. The project overall will consist of four phases:
- A webinar series intended to educate participants about collaborative research and quality improvement networks;
- A survey to collect top research questions and outcomes to improve;
- The Research CP workshop in Chicago in mid 2017;
- A whitepaper to convey the results of the Research CP series.