Cerebral Palsy Registry Status

Symbol Meaning
Progress toward milestone
Not working
Not started
The CPRN Clinical Registry is implemented at sites using one of two methods:
  1. CPRN Data collection forms built into the Electronic Medical Records System (EMR) where data is collected as a standard part of clinical care by the provider, or
  2. Chart abstraction by clinical research assistant by reviewing the medical note in the EMR.
The table below provides the status of every site that has been invited to join the network. Data from the EMR is transferred to the registry database housed at the University of Utah. The columns below are in reverse chronological order, i.e., the right most column is the first step for a CPRN site to prepare the registry. Institutional Review Board (IRB) dates are based on the most recent renewal of the IRB protocol for the registry.
Center Transferring Registry Data Enrolling Patients EMR Forms Ready Business Associates Agreement Signed Institutional Review Board Approval Letter of Agreement Signed
AI duPont Hospital for Children
February 20, 2018
Boston Children’s Hospital
February 20, 2018
Children’s Hospital Colorado
September 28, 2017
Children’s of Alabama
March 1, 2017
Cincinnati Children’s Hopsital
Gillette Specialty Care
November 21, 2017
Nationwide Children’s Hospital
February 20, 2018
Phoenix Children’s Hospital
March 9, 2018
Primary Children’s Hospital
February 17, 2017
Seattle Children’s Hospital
February 20, 2018
Texas Children’s Hospital
Texas Scottish Rite Hospital for Children
February 20, 2018
February 9, 2018
UCSD / Rady Children’s Hospital
University of Florida — Jacksonville
University of Michigan Medical Center
March 7, 2017
University of North Carolina — Chapel Hill
University of Virgina
March 31, 2017
UT Health — Houston