Cerebral Palsy Registry Status

Symbol Meaning
Ongoing

Completed
Progress toward milestone
Not working

Not started

The CPRN Clinical Registry is implemented at sites using one of two methods:

  1. CPRN Data collection forms built into the Electronic Medical Records System (EMR) where data is collected as a standard part of clinical care by the provider, or
  2. Chart abstraction by clinical research assistant by reviewing the medical note in the EMR.

The table below provides the status of every site that has been invited to join the network. Data from the EMR is transferred to the registry database housed at the University of Utah. The columns below are in reverse chronological order, i.e., the right most column is the first step for a CPRN site to prepare the registry. Institutional Review Board (IRB) dates are based on the most recent renewal of the IRB protocol for the registry.

Site Transferring Registry Data Enrolling Patients EMR Forms Ready Business Associates Agreement Signed Institutional Review Board Approval Letter of Agreement Signed
AI duPont Hospital for Children

February 20, 2018

Boston Children’s Hospital

February 20, 2018

Children’s Hospital Colorado

September 28, 2017

Children’s of Alabama

October 9, 2017

Cincinnati Children’s Hopsital

Gillette Specialty Care

November 21, 2017

Nationwide Children’s Hospital

February 20, 2018

Phoenix Children’s Hospital

March 9, 2018

Primary Children’s Hospital

February 17, 2017

Seattle Children’s Hospital

February 20, 2018

SickKids

Texas Children’s Hospital

Texas Scottish Rite Hospital for Children

February 20, 2018

UCLA

February 9, 2018

UCSD / Rady Children’s Hospital

July 11, 2017

UCSF

University of Florida — Jacksonville

February 27, 2018

University of Michigan Medical Center

March 7, 2018

University of North Carolina — Chapel Hill

University of Virgina

March 31, 2017

UT Health — Houston

July 31, 2017