The Cerebral Palsy Research Network (CPRN) posted a webinar entitled “How to Join CPRN” today. This 20-minute webinar features CPRN Chairman Paul Gross narrating a slide presentation that he delivered at a recent annual meeting of the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) in Montreal. The webinar takes prospective sites through a brief update on the founding and status of CPRN and then walks through the steps necessary to get the CPRN Clinical Registry up and running and how to formally join the network.
CPRN recently completed its Standard Operating Procedures (SOPs) that detail how investigators can apply to conduct their research with CPRN. The SOPs also describe the approval process for adding new sites to CPRN. This webinar will provide the fundamental background necessary to determine if joining CPRN is of interest to you and your institution for conducting research. The core difference between applying to conduct a study through CPRN and joining the network is the implementation of the CPRN Clinical Registry and ongoing collaboration for your institution. CPRN members are expected to implement the CPRN Registry at their institution and collaborate with other members of CPRN to plan and conduct multi-center studies and quality improvement initiatives.