Cerebral Palsy Research Network Blog

Archive for May 2016 – Page 2

Complete CPRN Registry System Demonstrated

CPRN is excited to announce that a major milestone has been reached with the help of both Texas Scottish Rite Hospital and Nationwide Children’s Hospital regarding EMR rollout.

Texas Scottish Rite Hospital for Children’s (TSRH) Chief Medical Information Officer, Lawson Copley, M.D. demonstrated a complete implementation of the CPRN Registry to the CPRN Investigator Committee on May 9, 2016. Dr. Copley built the CPRN forms for TSRH upcoming Epic electronic medical record system (EMR) rollout. Dr. Copley is an orthopedic surgeon at TSRH who has extensive experience with building EMR based forms that combine clinical visits with research goals. He is also chairs the Pediatric Orthopedic Steering Board, providing advice on structured data collection for orthopedic interventions, for Epic. The work of TSRH has formed the basis for recommendations to Epic for structured data collection for cerebral palsy.

This demonstration gave the CPRN investigators a view of how the whole CPRN Registry will work within the context of the clinical work flow. The Epic forms will ultimately be shared with all CPRN members who are Epic customers. There are seventeen forms in three different categories planned: surgical, clinical and patient reported. The plan for the CPRN Registry is to first roll out the CPRN clinical forms that have been developed by Nationwide Children’s Hospital. This roll out is tentatively scheduled for late summer and will enable multi-center data collection on cerebral palsy patients. This staged approach to the CPRN Registry pilot will accelerate the readiness of CPRN sites to rollout the complete CPRN Registry data collection suite of forms in early 2017.